A big thanks to everyone who donated to this event, it was a great day (see the pics on the left) and we managed to raise £85.00 for CMT!!
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Hi,
My mum has been suffereing with Charcot-Marie-Tooth disease for many years. You've probably never heard of it because it's rare, but it's effects are really nasty. My mum's muscles are effectively wasting away and she's becoming less mobile over time. It saddens me because there's no cure and not much that can be done about it at the moment. She will be having an operation on her hands soon to help ease some of the pain because her disease is really taking it's toll on her. I want to raise some money for this charity by jumping into the River Forth, South
Queensferry, Edinbourgh on the first of January 2010 as part of the 24th Annual Loony Dook (a traditional and fundraising event where people wear fancy dress and go for a really cold swim!). I'm unsure what to wear though, hmm..
CMT is a condition that affects the nerves in your legs and arms, known as the peripheral nerves.
Our body’s system of nerves is similar to a network of electrical
wires. Some of them, called sensory nerves, are designed to pass
information back to the brain about what you can feel with your
fingers, toes, legs and arms, etc. The others are command pathways,
telling your muscles to do something, like lift your left foot – and
are called motor nerves. Because CMT affects both types of peripheral nerve, you may experience
motor problems as the command pathways fail to respond properly,
causing weakness and wasting in your muscles and numbness/sensory
problems, arising from the problems with the sensory nerves. - CMT United Kingdom.
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