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Archie and friends dance the night away

natalie ferguson is raising money for Wolf Hirschhorn Syndrome Trust
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Disco Dance! · 4 May 2013

The Wolf Hirschhorn Syndrome Trust supports families affected by this rare genetic disorder by providing information in the form of newsletters, organising biennial national meetings, promoting awareness, funding research and grants, and forming links with support groups around the world.

Story

Archie (with the help of his parents!) is going to be showing off his moves alongside his new found friends at the Wolf Hirschhorn Syndrome Trust national meeting.

Approximately 40 people with Wolf Hirshhorn and their families will be boogying away to raise some pennies for the trust. The Trust supports families affected by the rare genetic syndrome and fund research into the condition. 

Thirty minutes of dancing may not sound like much, but it's a marathon for individuals with low muscle tone! 

Anything's appreciated, even a penny a minute. 

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Donation summary

Total
£235.00
+ £58.75 Gift Aid
Online
£235.00
Offline
£0.00

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