Chris Reader

Chris's Just Walk page

Fundraising for Reverse Rett
£910
raised of £500 target
by 55 supporters
Donations cannot currently be made to this page
Event: Just Walk 2014, on 10 May 2014
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

The daughter of a close friend of mine has Rett Syndrome - never heard of it?  neither had I.  The more I understood the situation that was faced day in day out by the families affected, the more I wanted to try to do something do help them.  Retts affects primarily girls, and these poor little girls are often unable to walk and talk, as well as having a wide range of other issues.  It is a lot like being locked in.

As a parent the things that I take for granted like my son calling me 'Dad' and telling me that he 'loves me', are the things that parents whose children are affected by Retts can only dream of.  However, there is a potential cure out there as this condition has been reversed in the lab.  The team I am walking with want to raise as much money as possible to make it happen.  I am one of the 'lucky' ones, most of the team I am walking with have children with Retts.

If enough money is raised and the research continues until a cure is found then maybe the girls will be able to thank us themselves.  Until then I want to help them as much as I can.

Walking 60km might not be alot and might not raise the £££s required but it all helps.  Please help in any way you can.  Thank-you.

About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£910.00
+ £192.50 Gift Aid
Online donations
£820.00
Offline donations
£90.00

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