Thanks for taking the time to visit my JustGiving page.
In loving memory of the late Angela Mary Parsons who passed away at the age of 61, on 31st August 2006, from Polycystic Kidneys Disease (PKD). Not only a Mother, but a Nan, and one of the most genuine person who lived life to the fullest. R.I.P. xxx
I am going to be doing a sponsored Bungee Jump (165 ft) at the O2 Arena, May 2010, Me and close family and friends will be taking part, 5 of us in total. From this we hope not only to raise money to help towards research for the cure for PKD, but also to raise awareness and to help encourage donors to make the people who suffer from PKD's life a little easier and for that extra bit of hope.
The PKD charity is very important to me because the disease runs through my family and was the cause of my Nans death. The disease is hereditary and there is a 50% chance that the disease is passed down to your children, sadly my Auntie and my Mother both suffer from PKD. My mother had the sad news that she would have to find a kidney donar within a few years.
The average age of developing kidney failure is 60, my mother is only 40! Not only do they suffer, but me, my siblings and my cousins have that chance of inheriting PKD. This isnt a plea to help our family, this is just to show that we are one of many familys that are affected from the disease. There are two types of PKD, ADPKD and ARPKD, our family suffers form ADPKD,
AUTOSOMAL DOMINANT POLYCYSTIC KIDNEY DISEASE, the world’s most common inherited life-threatening condition, in which fluid-filled cysts develop in both kidneys. Between 1 in 800 and 1 in 1000 people worldwide suffer from ADPKD. Over half of those affected will have kidney failure by the time they are 60 years old. If someone has ADPKD, there is a 50% likelihood that the disease will pass to each child.
You can find our story which was in the Bournemouth Daily Echo on the following link, http://www.bournemouthecho.co.uk/news/4730677.A_leap_of_love_spurred_by_fear_of_losing_Southbourne_mum_to_kidney_disease/#show
PKD affects around 12.5 million people worldwide and currently there is no cure and no treatment to prevent the condition progressing. The Polycystic Disease charity was established in 2001 to provide advice, information and support for the individuals affected by PKD and their families. They work to support the research of leading specialists in the field, with the ultimate aim of providing a cure for PKD.
For more information on PKD go to their website at www.pkdcharity.co.uk
I would also like to say a massive thank you to all my friends who are supporting me in also doing the bungee jump with me, I love you guys! xxx
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