Story
Thanks for taking the time to visit my JustGiving page.
Ive set up this page to raise awareness and support of Plagiocephaly. My son charlie who is 5 month old has recently been diagnosed with severe plagiocephaly.
Our journey began after we noticed a flat area on the side of his head when he was 12 weeks old along with a lump appearing over his left eye. We also noticed that his left eye and cheek were larger and that his ears were not symetrical.
We raised concerns with the Health visitor who basically fobbed us off so went to our GP. She referred us to the consultant at the hospital who basically told us that he was fine and it should be ok when he is older and when he grows more hair. He referred us to the Physio as he had neck tighening (Torticollis) which is why he layed and looked at one side.
After seeing the physio she remarked that his Plagiocephaly (Flat head sydrome) was extreme but that the NHS did not fund treatment as it was cosmetic. She gave us a leaflet for a private clinic in Leeds where a special helmet could be fitted but it would cost us approx £2000.
We have been to the Time in Motion in Leeds who have confirmed that Charlie has severe Plagiocephaly with a mis-alignment of 26mm.
We are fundraising with support from family, friends and work collegues. we will be carrying out a number of sponsored tasks as well as other fundraising events and would welcome any support. We hope to raise £2000 for charlies helmet as well as raising awareness and putting pressure on the NHS to start to fund this treatment for babies. .
Many thanks for your support, Mel, Darren and Charlie xx
Our journey began after we noticed a flat area on the side of his head when he was 12 weeks old along with a lump appearing over his left eye. We also noticed that his left eye and cheek were larger and that his ears were not symetrical.
We raised concerns with the Health visitor who basically fobbed us off so went to our GP. She referred us to the consultant at the hospital who basically told us that he was fine and it should be ok when he is older and when he grows more hair. He referred us to the Physio as he had neck tighening (Torticollis) which is why he layed and looked at one side.
After seeing the physio she remarked that his Plagiocephaly (Flat head sydrome) was extreme but that the NHS did not fund treatment as it was cosmetic. She gave us a leaflet for a private clinic in Leeds where a special helmet could be fitted but it would cost us approx £2000.
We have been to the Time in Motion in Leeds who have confirmed that Charlie has severe Plagiocephaly with a mis-alignment of 26mm.
We are fundraising with support from family, friends and work collegues. we will be carrying out a number of sponsored tasks as well as other fundraising events and would welcome any support. We hope to raise £2000 for charlies helmet as well as raising awareness and putting pressure on the NHS to start to fund this treatment for babies. .
Many thanks for your support, Mel, Darren and Charlie xx
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