My story

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So please sponsor me now!

Many thanks for your support.

www.lowetrust.com - The Lowe Syndrome Trust is a small, voluntary charity funding medical research into the incurable children' disease called Lowe Syndrome.  Since forming in June 2000, the charity has funded five UK research Projects.

www.lowetrust.com/cycle06.htm  - Charity bike ride to help raise £50,000 for a medical research project into Lowe Syndrome, an incurable children’s disease.

My charity

Lowe Syndrome Trust

Lowe Syndrome Trust

Charity Registration No. 1081241

The Lowe Syndrome Trust is a UK Charity formed in June 2000 by parents of a Lowe syndrome child. The charity supports families and initiates and funds medical research into Lowe Syndrome. Lowe Syndrome is a genetic disorder that can occur with no family history, affecting boys and multiple physical and mental handicaps including cataracts in both eyes, muscle weakness (hypotonia or floppy baby syndrome), kidney problems, cysts, brittle bones, arthritis, poor growth, mental impairment with behaviour problems (autistic spectrum disorder) and epilepsy. Sadly the life expectancy for these children is short due to the complications of the disease and the lack of funding to find a cure.

Donations 32

Donation by Barry Gilbey on 21/06/06

£20.00

+ £5.64 Gift Aid

go dave go

Donation by Bernie Brookes on 12/06/06

£50.00

+ £14.10 Gift Aid

well done

Donation by jasmine & skye on 05/06/06

£20.00

+ £5.64 Gift Aid

Good Luck David

Donation by Abi and Esther Raffell on 04/06/06

£20.00

+ £5.64 Gift Aid

Have Fun!

Donation by Paul Sheridan on 28/05/06

£10.00

+ £2.82 Gift Aid

Very best of luck David

Donation by Noll on 16/05/06

£20.00

+ £5.64 Gift Aid

Good Luck David

Donation by Sudheer on 15/05/06

£10.00

+ £2.82 Gift Aid

Donation by Gary Halls on 10/05/06

£20.00

+ £5.64 Gift Aid

Donation by Neil Russell on 09/05/06

£20.00

+ £5.64 Gift Aid

Donation by Rebecca on 09/05/06

£20.00

+ £5.64 Gift Aid

Donation by Jeremy Ward on 09/05/06

£20.00

+ £5.64 Gift Aid

Ride like the wind Baldy!

Donation by John O'Shea on 09/05/06

£20.00

+ £5.64 Gift Aid

Donation by James Mold on 09/05/06

£20.00

+ £5.64 Gift Aid

Donation by Gary on 09/05/06

£20.00

+ £5.64 Gift Aid

If you get your hair cut really short you will go faster!

Donation by DaveP on 09/05/06

£20.00

+ £5.64 Gift Aid

Donation by Andrew Smith on 09/05/06

£30.00

+ £8.46 Gift Aid

Good luck!

Donation by Alex Greenbaum on 25/04/06

£50.00

Good Luck

Donation by Zoli Bharmal on 24/04/06

£50.00

+ £14.10 Gift Aid

Donation by Andrew McCrackan on 21/04/06

£50.00

Go get 'em tiger....Grrrrr!

Donation by Abbie on 21/04/06

£20.00

+ £5.64 Gift Aid

good luck

Donation by Mark on 18/02/06

£20.00

+ £5.64 Gift Aid

Donation by Paul King on 07/02/06

£100.00

Good luck on the ride

Donation by Marc on 31/01/06

£50.00

I wish your legs 'good luck'!

Donation by Stephen on 12/01/06

£20.00

+ £5.64 Gift Aid

Good luck with the challenge

Donation by Marin Ganev on 05/01/06

£20.00

+ £5.64 Gift Aid

Donation summary

  • * Online donations£890.00
  • Offline donations£610.00
  • Text donations£0.00
  • Total raised£1,500.00
  • Gift Aid£160.77

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