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Darren's Marathon
Event: Virgin London Marathon 2012 on 22/04/2012
£648.00 raised of £1,500.00 target
35 donations
My Target:
£1,500.00
£648.00 raised so far
How to make a donation
Donate online at - www.justgiving.com/Darren-Crick0
By mobile internet Scan this code on your smartphone to go straight to Darren Crick's page.
By text message to donate £10 Text XOWG47 £10
to 70070
My story
Hi my name is Darren Crick. I am 27 years old, At the age of 18 months old I was diagnosed with Dancing Eye Syndrome (DES) also known as Opsoclonus Myoclonus (Irregular jerking movements of the body and shaking of the eyes.) Following steroid treatment, visits too many doctors and the occasional visit to Great Ormond Street Hospital for a Year and a half it disappeared, I had a relapse at the age of 7, but since then I have gone through main stream school and now work as a carpenter. However, this is very rare as other children who have been diagnosed with DES have had neuroblastomas (Cancerous tumours) and their learning and social skills are very much affected by this illness. The Dancing eye support group was started in 1988 by a mother of a DES child. It relies solely on sponsored money, which goes towards very expensive research, and also a very important annual weekend away for parents and children of DES. This gives the parents a break and for them to share their individual stories and to let them know they are not on their own. This support group has been there for me and my family through my illness as a child and I feel by running the London marathon and being sponsored I can be a part of helping and give back to the Dancing Eye Syndrome group to continue their research So please, please help me by sponsoring me to help keep this group going which is close to my heart Thank you for reading
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
My gallery 3
My charity
Dancing Eye Syndrome Support Trust
Charity Registration No. 1060181
The Dancing Eye Syndrome Support Group was formed in 1988 with the principal aim of providing a link for parents of children with D.E.S. both locally and nationally. The Dancing Eye Syndrome Trust provides support and information to families of children with Dancing Eye Syndrome.
Donations 35
Donation by Anonymous on 20/02/12
£20.00
+ £5.00 Gift Aid
Good luck from Holland !
Donation by Jaap Profijt on 09/02/12
as promised one donation! well done to you and good luck from aunty lynn , keep up the training!!! lots of love, xxxxx
Donation by lynn frodsham on 09/02/12
£10.00
Darrin; Greetings from your friends in the US. Your efforts inspire all of the OMS / DES families world wide!!! Jeremiah 29:11
Donation by Mike & Pam Michaelis on 09/02/12
msg bought a tear 2 my eye.I rememba tagging along with u 2 the little outings.I kissd 1of the girls &she told u i was a'rubbish kisser'i was guttd x
Donation by TomPower&Amelia on 04/02/12
£50.00
+ £12.50 Gift Aid
Good luck Darren!
Donation by Pip & Simon on 04/02/12
£40.00
+ £10.00 Gift Aid
Good Luck mate, all the best son!
Donation by Samuel Claus on 31/01/12
£30.00
+ £7.50 Gift Aid
Good Luck nephew! Love Linda
Donation by Linda Philpot on 30/01/12
£10.00
+ £2.50 Gift Aid
Those legs are made for running, thats what they're meant to do, and when you reach 26 miles dont forget the nought point two!!!
Donation by Maggie Terry on 28/01/12
£30.00
Good Luck,keep going!! -from Shannon Moore (DES) ,Stephen Moore , Lesley Molyneux & Brandon Moore.
Donation by lesley molyneux on 27/01/12
£20.00
+ £5.00 Gift Aid
Run forrest run!! Will be thinking of you on the way round - Good luck!! X
Donation by Ali Stewart-Paterson on 25/01/12
£10.00
+ £2.50 Gift Aid
Good luck Darren!! Xx
Donation by Jennifer Davies on 22/01/12
£10.00
+ £2.50 Gift Aid
Good luck. Your cause was highlighted to me by Karen Sherburn. A worthy cause.
Donation by Michelle O'Connor on 18/01/12
Good luck Darren!! Hope to see you at the weekend break, Karen, Tim, Adrianna and Lily xxx
Donation by Karen Sherburn on 18/01/12
£20.00
+ £5.00 Gift Aid
Congratulations Darren! Thank you for running to raise money for DESST. All the best of luck with the training!
Donation by Diana Wright on 17/01/12
£10.00
+ £2.50 Gift Aid
Well done for being committed to this cause. I am a good friend of Karen with her daughter, Bethany. Good luck.
Donation by Lucy Cleaver on 17/01/12
£20.00
+ £5.00 Gift Aid
Well done Darren!! We all must catch up soon, maybe on marathon day?!! Good luck xx
Donation by Selina White on 16/01/12
£20.00
+ £5.00 Gift Aid
My 2 year old daughter has OMS. Thank you so much for staying committed to raising money for research. Good luck, Jenel, Mike, Gemma & Shawnee.
Donation by Jenel campbell on 11/01/12
£10.00
Thanks for all your hard work. The money raised will be really appreciated by all in DESST. Good Luck! Janet, Peter, Alys and Sara Compston X
Donation by Janet Compston on 11/01/12
£20.00
+ £5.00 Gift Aid
Good Luck, hope run goes well. Thanks for raising money for DES group, it's really valuable to our family, Thank you, Paul, Liz, Emma and Zoe Kelsall
Donation by Liz Kelsall on 11/01/12
£20.00
+ £5.00 Gift Aid
Hope the training is going well. Thanks for your support Darren it is very much appreciated. - Alison, Brian, Isla and Euan Robertson x
Donation by Alison Robertson on 11/01/12
£20.00
+ £5.00 Gift Aid
Best of luck, Darren - I'll be thinking of you! x
Donation by Susan Rutledge on 07/01/12
£20.00
+ £5.00 Gift Aid
Best of luck mate - I'm running too so maybe see you along the way! Hope all well
Donation by Robin Davies on 06/01/12
£10.00
+ £2.50 Gift Aid
Phew payday at last! :-) Good luck and well done for all your charity work! X
Donation by Emily Catling on 05/01/12
£10.00
+ £2.50 Gift Aid
Donation by Wendy Boyd on 31/12/11
£10.00
+ £2.50 Gift Aid
Donation summary
- * Online donations£625.00
- Offline donations£23.00
- Text donations£0.00
- Total raised£648.00
- Gift Aid£125.00
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
