My story

Hi my name is Darren Crick. I am 27 years old, At the age of 18 months old I was diagnosed with Dancing Eye Syndrome (DES) also known as Opsoclonus Myoclonus (Irregular jerking movements of the body and shaking of the eyes.)

Following steroid treatment, visits too many doctors and the occasional visit to Great Ormond Street Hospital for a Year and a half it disappeared, I had a relapse at the age of 7, but since then I have gone through main stream school and now work as a carpenter.

However, this is very rare as other children who have been diagnosed with DES have had neuroblastomas (Cancerous tumours) and their learning and social skills are very much affected by this illness.

The Dancing eye support group was started in 1988 by a mother of a DES child. It relies solely on sponsored money, which goes towards very expensive research, and also a very important annual weekend away for parents and children of DES. This gives the parents a break and for them to share their individual stories and to let them know they are not on their own.

This support group has been there for me and my family through my illness as a child and I feel by running the London marathon and being sponsored I can be a part of helping and give back to the Dancing Eye Syndrome group to continue their research

So please, please help me by sponsoring me to help keep this group going which is close to my heart

Thank you for reading

Dancing Eye Support Group

 

 

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My charity

Dancing Eye Syndrome Support Trust

Dancing Eye Syndrome Support Trust

Charity Registration No. 1060181

The Dancing Eye Syndrome Support Group was formed in 1988 with the principal aim of providing a link for parents of children with D.E.S. both locally and nationally. The Dancing Eye Syndrome Trust provides support and information to families of children with Dancing Eye Syndrome.

Donations 102

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Good Luck Darren!! Such a great cause! x x

Donation by Danielle Edwards on 19/04/12

£10.00

+ £2.50 Gift Aid

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Darren you smell. Good luck on Sunday see you then, We'll be the ones with the strongbows in our hand. Love Jess and Rich

Donation by Jessica Terry on 19/04/12

£30.00

+ £7.50 Gift Aid

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Much respect to you Darren ...good luck getting round, show us the blisters in a couple of weeks time in Cumbria

Donation by Justin & Lorna Coldwell on 17/04/12

£20.00

+ £5.00 Gift Aid

Don't know why it comes up anonymous. Gibbo

Donation by Anonymous on 17/04/12

£20.00

+ £5.00 Gift Aid

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Hope your shins dont play up from your fake "stepdad"

Donation by raymond adcock on 16/04/12

£20.00

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I am best mates with mandy caunter and sadie my daughter with ellie caunter . U are an inspiration to dancing eye syndrome

Donation by tish bishop on 15/04/12

£5.00

+ £1.25 Gift Aid

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All the best Darren.

Donation by Robert Oakley on 15/04/12

£10.00

+ £2.50 Gift Aid

Good luck with your run Darren we will be there to cheer you on . Mark , Jemma and family :-))

Donation by Mark Walker on 13/04/12

£50.00

+ £12.50 Gift Aid

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You're a super star! Just think how amazing it's going to be when you cross the finishing line! X

Donation by Alison Stewart-Paterson on 12/04/12

£10.00

+ £2.50 Gift Aid

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Your a ledge! Good luck mate

Donation by Edward Bateson on 11/04/12

£20.00

+ £5.00 Gift Aid

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Good Luck mate hope you enjoy it and that you make your target!

Donation by Wesley Ankrah on 11/04/12

£10.00

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yo darren! good luck with the run and enjoy the atmosphere, its amazing:)

Donation by karen brazier on 11/04/12

£20.00

+ £5.00 Gift Aid

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Keep up the good work Darren. I'll miss you all at the DES weekend. Will be back to join you all again in 2013. Lots of love, Beth's Aunty Jo x

Donation by Jo Brazier on 11/04/12

£50.00

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good luck

Donation by allan kelly on 09/04/12

£10.00

+ £2.50 Gift Aid

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Good luck Darren - from Bethany's Nanny & Grandad xx

Donation by Pam Brazier on 03/04/12

£10.00

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Good luck Darren!! Xxx

Donation by Lianne, Mark & Ruby-May on 02/04/12

£20.00

+ £5.00 Gift Aid

Good Luck Darren, not long now! I will be there supporting probably aroung 13/14 miles so will be looking out for you! Enjoy xx

Donation by Maggie & Ken Gibson on 01/04/12

£20.00

+ £5.00 Gift Aid

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Good luck for your marathon, and we hope you reach your target for such a worthy cause.

Donation by J Fawns on 01/04/12

£20.00

+ £5.00 Gift Aid

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Thank you for your effort to raise awareness about OMS. Our positive thoughts are with you.

Donation by Mehul Joshi on 29/03/12

£10.00

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Best of luck to you from your youngest "OMS friend" (and his family) all the way in Illinois, USA.

Donation by Renee Johnson on 29/03/12

£10.00

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All done mate, not much but bit skint at the mo, think rosa has already donated as well. Hope you get to your target.

Donation by Ryan Thorpe on 29/03/12

£10.00

+ £2.50 Gift Aid

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Good luck mate, Save a little energy for Monday morning !!!

Donation by Adrian Roffey on 28/03/12

£50.00

+ £12.50 Gift Aid

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Good Luck DART.. LOVE AND HUGS RAGS X

Donation by raquela mosquera on 28/03/12

£20.00

+ £5.00 Gift Aid

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Good Luck,hope you get your target!

Donation by sabrina mckay on 28/03/12

£10.00

+ £2.50 Gift Aid

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Good Luck on the marathon and for raising money for such a great cause.

Donation by Stephanie Cancienne on 21/03/12

£20.00

Donation summary

  • * Online donations£2,002.00
  • Offline donations£23.00
  • Text donations£0.00
  • Total raised£2,025.00
  • Gift Aid£414.25

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