My story

Thanks for taking the time to visit Niamh's Next Step, our Just Giving page for Niamh Curry.

This page has been set up to help raise awareness and funds for our brave and inspirational 5 year old little girl as she fights a rare childhood cancer called Neuroblastoma. As we stand today, there is no cure for Niamh in the UK so we are desperate to raise funds for lifesaving treatment in the USA.

Our little girl Niamh was diagnosed with a rare and aggressive childhood cancer called Neuroblastoma (Stage 4 High Risk) just before Christmas 2010 when she was just 3 years old. Since then Niamh has spent countless days and nights in hospital for treatment that has included Rapid Cojec Chemotherapy, a 4 hour operation to remove the tumor which was located on her adrenal gland, high dose chemotherapy and stem cell transplant and 14 treatments of Radiotherapy. On top of this there have been lots of blood and platelet transfusions, lots and lots of scans and general hospital visits and loads of time away from home. 

Despite all this Niamh still remains the happiest, kindest, most caring little girl you will ever meet. She is always smiling and loves a huggle with her big sister Hannah or her mummy and daddy. 

Things were going really well with Niamhs treatment and she started big school in September. Life was getting back to normal, well sort of. In November 2011 plans were put into place to start the final antibody treatment called Anti GD2. This gives the biggest hope of keeping the Neuroblastoma away for good.  After nearly 1 year of treatment there was light at the end of the tunnel for Niamhs family.The hospital carried out all of the usual pre- treatment MIBG & MRI scans and the bone marrow biopsies. Two days before going into hospital for the Anti GD2 Niamh's parents got a phone call from the hospital that broke their hearts all over again. The cancer had come back...

We were already aware that there is no UK relapse protocol and now had to face the harsh realisation that any treatment in the UK does not aim to cure Niamh. 

In the US this is not the case and there are many relapse protocols. This is where we need to take our amazing little girl to give her the best chance of survival. 
The treament Niamh needs is at The Children's Hospital of Philidelphia and costs around £450'000. 

You can read Niamh's blog here http://www.niamhsnextstep.com/our-journey.html for regular updates about our brave little girl. 

Please donate if you can and help us save Niamh and other little ones like her. 

Thank you so much for your support.. It means the world to us..

Lots of Love

Chris, Samantha, Hannah and Niamh.... Team Niamh....

My charity

Neuroblastoma Children's Cancer Alliance

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.

Donations 22

Donation by John Murphy on 06/07/12

£450.00

+ £112.50 Gift Aid

Donation by Oliver Whitworth on 04/07/12

£500.00

+ £125.00 Gift Aid

Feel proud of yourselves David, you did so well raising so much money. Beautiful Niamh has left so many positive memories and inspired so many people.

Donation by maxine barratt on 21/05/12

£3,734.65

+ £933.66 Gift Aid

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Donation by gary ahern on 17/05/12

£110.00

+ £27.50 Gift Aid

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Thanks for the great evening! We are glad to help and all the best! Sander and Siobhan Rensen

Donation by Sander Rensen on 15/05/12

£350.00

+ £87.50 Gift Aid

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Thanks for a great evening for a great cause. All the best Tony and Linda Dekanski

Donation by Tony Dekanski on 13/05/12

£110.00

+ £27.50 Gift Aid

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I am delighted to show my support for the charity and hopefully the signed Ian Poulter golf shirt will inspire me to improve my golf game

Donation by Paul Thurland on 11/05/12

£500.00

+ £125.00 Gift Aid

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It was a great evening for a very worth cause. Thank you

Donation by ANDREW JEYARAJAH on 08/05/12

£300.00

+ £75.00 Gift Aid

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Great night, well done to you and Tony for organising.

Donation by Sean Masterson on 08/05/12

£1,900.00

+ £475.00 Gift Aid

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A donation from us to a great cause. All our love

Donation by Gertie and John on 07/05/12

£100.00

+ £25.00 Gift Aid

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I had a lovely evening and am proud to have taken part in raising funds for beautiful Niamh. Best wishes

Donation by Clare Mason on 07/05/12

£100.00

+ £25.00 Gift Aid

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Loving the Jenson and Lewis cap and its extra special because of where the money is going to. Thanks for a fantastics evening. Best wishes

Donation by Rafi and Niki Mimoni on 07/05/12

£900.00

+ £225.00 Gift Aid

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Thanks for a great evening. Ruth and I had a great time and it was for a great cause. Best wishes

Donation by Mark Hutton on 07/05/12

£110.00

+ £27.50 Gift Aid

Donation by Barry Wills on 07/05/12

£285.00

+ £71.25 Gift Aid

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Great night. Great cause. Well done to all of you that made this such a special event x

Donation by Tracey Wright on 07/05/12

£685.00

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Well done David and Tony and everyone involved in the event you have done amazing.

Donation by Stuart, Carla & Paige Crawford on 05/05/12

£360.00

+ £90.00 Gift Aid

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Hope the day is a sucess and as much money as possible can be raised for such a beautiful and brave little girl. Stay strong & good luck Niamh x

Donation by Konnect Services on 30/04/12

£1,500.00

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Best Deal Insurance for Golf Day x 4 people at Luton Hoo

Donation by Simon Underwood / David Thomson on 27/04/12

£260.00

+ £65.00 Gift Aid

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We are proud to be a part of this event, and hope that we can provide as much help and support as possible for this wonderful cause

Donation by Smarter Energy Solutions Ltd on 25/04/12

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Our Lady Of Grace Infant School has kindly donated this money to go towards this event for Jay Gordons beautiful and brave cousin. Stay Strong x

Donation by carla retter on 23/04/12

£165.00

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Donation by Jennifer Berridge on 09/04/12

£110.00

+ £27.50 Gift Aid

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We hope your Golf Day is a resounding success, raising loads of money for Niamh and her cause.

Donation by MP Moran on 06/03/12

£500.00

+ £125.00 Gift Aid

Donation summary

  • * Online donations£16,079.65
  • Offline donations£3,750.00
  • Text donations£0.00
  • Total raised£19,829.65
  • Gift Aid£2,669.91

* Charities pay a small fee for our service. Find out how much it is and what we do for it.