Story

Hi my name is Darren I’m 27 years old and I have Cystic Fibrosis, I'm number 42 in the picture. 

Cystic Fibrosis is the ’s most common, life threatening, inherited disease and affects vital organs in the body, especially the lungs and pancreas by literally clogging them with thick, sticky mucus making it hard to breathe and digest food.

The average age for people with CF is 31 so being 27 now I hope I’m above average!  Having Cystic Fibrosis has its ups and downs you get to meet lots of new friends and interesting people with CF through the various charities and hospitals visited but unfortunately with that you also end up losing many.

 

When I was younger my Mum used to take me swimming with my older sister Penny and 4 other friends who also had CF; swimming is good for exercising your lungs that’s why we started – sadly Penny and the 4 friends that I swam with then have all died and those days are long gone now, however the memories are still there.

It’s great to see the CF TRUST looking after people with CF and working hard to find a cure, hopefully this can be found soon so that the babies being born today with Cystic Fibrosis can have a much brighter future than my sister and our ‘swimming crew’ ever had.

With the help of my friends and family I’m looking to run the Great South Run in Portsmouth which is 10 miles all in aid of the CF Trust to raise money for gene therapy which will help stop lung damage and hopefully find the CURE that’s needed, the CF Trust needs £8 million a year to fund it's vital work so every penny received will be vital in achieving this goal.

There are 9 people running the Great South Run with me and they are Steven Williams, John and Dave Lane, Tim Cox, James Massey, Ben Sears, Darren Edwards, Rachel Wheeler and Jo Whittaker.  We have all been training hard and hope to complete the course in a good time so if you are in the Portsmouth area on the 22 October look out for us all in our “Team CF” fluorescent green running vests and cheer us on!

All donations will be gratefully received, no matter how small, every penny makes a difference!

Many thanks for your support,

Darren

A few facts on Cystic Fibrosis...

There are currently over 7,500 CF patients in the of which 50% are under 15 and 70% under 20 with the average life expectancy of 31 years.  Since the 1960’s the average life expectancy of CF patients has increased 5 years with improved treatment and management of CF.

1 person in 25 is a carrier of the faulty CF gene – that’s more then 2.3 million people in the – If both parents are carriers there is a one in four chance of the child being born with CF.

The Cystic Fibrosis Trust needs to raise £8 million every year to fund its vital work, the Trust funds medical and scientific research aimed towards understanding, treating and curing Cystic Fibrosis. It also aims to ensure that people with CF receive the best possible care and support in all aspects of their lives.

The CF Trust-funded research leads the field in the search for a cure. The research also addresses the serious symptoms and complications of the disease, which include infection, inflammation, malnutrition, liver failure and osteoporosis.

On average each week five babies are born with Cystic Fibrosis and three young lives are lost to Cystic Fibrosis. 

Links

www.cftrust.org.uk - CF Trust 

www.cfww.org - CF worldwide 

http://www.cfwristbands.co.uk/ - CF Wristbands site 

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: Cystic Fibrosis Trust will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

 

 

 

Raising money for

Cystic Fibrosis Trust

Cystic Fibrosis Trust

Charity Registration No. 1079049

Cystic fibrosis (CF) is a life-shortening inherited disease, affecting almost 10,000 people in the UK, clogging vital organs with thick sticky mucus. There is presently no cure. We are the UK’s only national charity working for families with CF and to find a cure. www.cysticfibrosis.org.uk

Donations 53

Donation by Hilary Bryan on 10/12/06

£10.00

+ £2.82 Gift Aid

Donation by Tim on 26/11/06

£70.00

+ £19.74 Gift Aid

Well done all of you !

Donation by Jo's Grandad on 30/10/06

£5.00

+ £1.41 Gift Aid

Nice one!!!!

Donation by Neil Parker on 24/10/06

£10.00

+ £2.82 Gift Aid

Well done gang!! Go Jo!!

Donation by Conway! on 24/10/06

£20.00

+ £5.64 Gift Aid

Go on Dazzler son

Donation by Gerry on 23/10/06

£10.00

+ £2.82 Gift Aid

Donation by Sam Evans on 23/10/06

£10.00

+ £2.82 Gift Aid

Read your story in the local paper and wanted to wish you the best of luck. x

Donation by Ali on 22/10/06

£20.00

+ £5.64 Gift Aid

Good luck to you all! Steve i want to see some Apache Jump on it dancing! ;o)

Donation by Leanne on 20/10/06

£10.00

+ £2.82 Gift Aid

Good luck to all especially old man Dave

Donation by Cubie on 20/10/06

£25.00

+ £7.05 Gift Aid

Dave your mad - good luck everyone

Donation by Mark on 20/10/06

£10.00

+ £2.82 Gift Aid

Good Luck on Sunday. xx

Donation by Sue on 20/10/06

£25.00

+ £7.05 Gift Aid

Good Luck Jo- Jo!!

Donation by Panny on 19/10/06

£5.00

+ £1.41 Gift Aid

Donation by sarena harwood on 19/10/06

£20.00

+ £5.64 Gift Aid

Remember - no broken bones!

Donation by dwarhurst on 18/10/06

£20.00

+ £5.64 Gift Aid

Good Luck Dave!!

Donation by Mel Fortune on 17/10/06

£5.00

+ £1.41 Gift Aid

Good luck Steve break a leg ha ha

Donation by Lauren on 17/10/06

£5.00

+ £1.41 Gift Aid

Donation by Geraldine West on 17/10/06

£10.00

+ £2.82 Gift Aid

Andale, adale! Arriba, arriba! eh-hah!

Donation by Laura Bates on 17/10/06

£20.00

+ £5.64 Gift Aid

Good luck hope it goes well.

Donation by Simon VaVa Vernoum on 17/10/06

£10.00

+ £2.82 Gift Aid

Enjoy the run and raise lots of money! Good luck and Jo we want to see a photo finish!!

Donation by Jenny Parris on 17/10/06

£10.00

+ £2.82 Gift Aid

All the best for your run Jo!

Donation by Claire McKibbin on 17/10/06

£5.00

+ £1.41 Gift Aid

MMMMM I saw your sandwich, it tasted very nice!

Donation by Wilf on 17/10/06

£25.00

+ £7.05 Gift Aid

Good Luck everyone!!

Donation by Maddie on 17/10/06

£10.00

+ £2.82 Gift Aid

Has Anyone seen my Sandwich?

Donation by Dave & John Lane on 16/10/06

£50.00

+ £14.10 Gift Aid

Donation summary

  • * Online donations£1,132.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£1,132.00
  • Gift Aid£234.67

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