WELCOME TO OUR STORY
2 years ago our Son Dan was diagnosed with Epilepsy-here is our story;
In the begining I thought Dan was just ignoring me when we were talking, we would be in the middle of a conversation and he would completley blank out. At first I thought it was just his age, I mean how could I possibly have anything interesting to say!
In the end I decided to take him to see the Doctor, she said it was probably nothing but would refer him to see a Paediatric Neurologist.
It was obvious the next morning when Dan woke up that something was very wrong. It's very hard to decribe, but Dan couldn't remember anything, who he was,who we were, his favourite football team(Liverpool) or anything of any importance. He couldn't get himself dressed and when I asked him to brush his teeth, he got in the shower.
I rang the Doctor and she said that he sounded as if he was post ictal? I thought he was having a nervous breakdown. It did not occur to me at that time that this had anything to do with Epilepsy.
We took him to the Children's ward where his behaviour got even more bizarre, he told the nurses the roof was going to cave in and other odd things. The Doctor's were now starting to talk Epilepsy, we couldn't quite grasp this, as does that sound like Epilepsy to you?
Over the next few months Dan had 2 EEG's and an MRI scan and it was confirmed that Dan had Epilepsy. Dan has Absence Seizures- basically Epilepsy without the convulsions. He can have prolonged seizures which can last for hours if not treated with emergency drugs.
It took quite a while to get his medication right and we have had to change it once, but things are a bit more settled at the moment.
One of the worst things about it is having no-one to talk to who understands, Dan has been through a lot and I'm sure he would benefit from talking to other children with the same problems. The thing is, is that he seems to have decided that he is ashamed of his Epilespy and doesn't want anyone to know about it!
This is why I have decided to climb Mount Kilimanjaro, not only to raise funds for Epilepsy Action but to raise awareness as well. I hope to get Dan involved with fund raising (have you tried to motivate a 12 year old) by doing events at school.
I will keep this page updated with my fundraising- I hope to be doing coffee mornings, car boot sales, a cake stall a quiz and as many other things as I can manage.
So please, please, please help me out by donating money to this worthy cause.
Fay xxx
P.S Photo is of myself and Dan- a rare hug in public!!!!!
P.P.S If any of you were wondering, that's not my house(lol)
Off Line Donations
September 2009 - Car Boot Sale £106.00
December 2009- Ken donated £10 instead of sending loads of Christmas Cards- Thanks Ken
December 2009 - Sold child's bike on E-bay - £84. The buyer Helen Scott rounded the figure to £90- Thanks Helen
December 2009- Just for fun Christmas quiz at work- £21.36. Thanks to Angela and Yvonne
January 2010 - Book sale at work, total so far- £357.52
January 2010 - Just for fun " know your Yorkshire" total - £31.18
February 2010 - Sponsor Forms and other donations, total so far- £544.50
February 2010- Irene's lovely cakes- £90.50 A huge thank you to Irene who made and sold all her cakes at work this week (17/02/10)
February 2010- Thanks to Angela who collected old clothes and sold them for 80p a kilo- we made £26.50- you can have your bedroom back now that you have got rid of all those bags!!!!
February 2010- Cards donated by Tracey- so far £11.00
March 2010- Guess how many sweets in the jar- £18.50 ( there was 91 sweets)
March 2010- A BIG thank you to Mr J B Smith for kindly donating £10.00
March 2010- Guess the weight of the cake- total £62.10. Thank you to Margaret who made the cake, I am only sorry I didn't win it!!
March 2010- Tombola. A massive £283.85 -Thank you to Angela and Gillian and to everyone who supported us.
March 2010- The Clown raised £6.50- thank you to the busy knitter
April 2010 - Thank you to Innovation Music who raised 232.00 from their Spring Concert
April 2010- Quiz Just for Fun-32.50
May 2010- A big thank you to Beeline Taxi's for sponsoring me £100
May 2010- Thank you very much to our friends at Emmanuel St. John who raised £125.00 at their weekly coffee morning.Especially to Stuart and Joan- thank you for your support and kindness.
May 2010- Car boot sale (in the pouring rain) £35.00- thanks Ange for helping me.
May 2010- Garden Party-we raised a massive £347!!! Thanks to all my family and friends who helped bake, make teas and wash up. Also thanks to those who supported the event by coming along.
June 2010- Guess how many sweets in the jar (243)- £22.67
June 2010- raffle £109
Thanks for taking the time to visit my JustGiving page.
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So please dig deep and donate now.
