I Love My Liver
I'm doing whatever it takes to raise money for British Liver Trust because there is currently no cure for my condition
Event: Love My Liver
£20.00 raised so far
How to make a donation
Donate online at - www.justgiving.com/GaryPaulTaylor
By mobile internet Scan this code on your smartphone to go straight to Gary Taylor's page.
By text message to donate £10 Text BDXB89 £10
Back in November 2008 I suffered from acute liver failure caused by a disease called Auto-Immune Hepatitis. I spent two full months in a hospital bed at The Queen Elizabeth Hospital Birmingham and most of 2009 off work. I have since been diagnosed with an over-lap condition called PSC (Primary Sclerosing Cholangitis)
This is a progressive disease to which there is, currently, no cure. The definitive treatment is liver transplant...
The unpleasant parts...
I've been Jaundice, I was yellow from head to toe, so much so that my little cousin (8 years old at the time) used to call me Banana Man! Thanks for that...
I used to get itching beyond belief, all over my body due to the build up of bile salts in my blood stream.
I get chronic pain across the right hand side of my body, so bad I can't concentrate at times and have to go to bed.
I felt sick...a lot - not anymore, but in the early days because of the medication, Azathioprine, that I was on.
I lost over 10% of my body weight in hospital and struggle to keep weight on. (You think this would be a good thing, but trust me it's not.)
Some days I was so exhausted I couldn't physically get out of bed.
I have given alcohol up completely and not had a drop since 26th October 2008 (those of you who know me will know I enjoyed a few beers on a weekend! Ahem...)
I have to take about 10-15 tablets a day, depending on how my blood tests are each month - over the last three years that works out to be well over 10,000 tablets to date
I go into hospital every month (for the first year it was every week!) for blood tests to monitor my liver function. I think I have probably given 1200 - 1500 tubes of blood since I was diagnosed
I have had two pretty big "flair ups" since then and have lost count of the amount of times I have suffered from chronic pain in my side, feverish chills at night times, sleepless night/insomnia due to the steroid treatment used to suppress my immune system or just generally feeling exhausted
I struggle to eat fatty / rich foods like steak (which I love...) or else I get bad stomach ache
I have had the following procedures to date:
4 x Ultrasounds
1 x MRCP
3 x Fibroscans
1 x Dexa Scan
3 x Liver Biopsies
1 x Colonoscopy (involving a 2-foot long camera being inserted up your backside, which I never want again!)
But even with all this going on...
I still maintain a great life and always try to be positive about the situation, not letting it dictate how my life should be. The chances are it will get worse, as the nature of the disease suggests, it is progressive.
This is a relatively rare disease and there are plenty of people with it who suffer far worse than I do. Now I want to help others by raising money to fund research into this disease and contribute to the efforts of finding a more definitive form of treatment to prolongue the need for transplant.
I love my liver and would rather not have to swap it for a new one... help me to help others, today!
Raising money for
Charity Registration No. England and Wales 298858, Scotland SC042140
The British Liver Trust is the only adult liver disease charity in the UK. Liver disease can be devastating. There are many causes of liver disease; we provide information, support and care for anyone affected and we reach over a million people every year - thank you for your support.
Hope this helps mate.
Donation by Matt Baxter on 22/03/12
+ £5.00 Gift Aid
- * Online donations£20.00
- Offline donations£0.00
- Text donations£0.00
- Total raised£20.00
- Gift Aid£5.00
* Charities pay a small fee for our service. Find out how much it is and what we do for it.