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ISS DIVE TEAM

Graham Pearson is raising money for Batten Disease Family Association
“Graham Pearson's fundraising”

on 6 June 2011

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Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

Story

<p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-size: x-small;"><span style="mso-bidi-font-family: Arial;">ISS UK</span><span style="mso-bidi-font-family: Arial;">&nbsp; has selected The Batten Disease Family Association (BDFA) as it&rsquo;s registered charity for our fundraising activities to commemorate the UK leg of the ISS Global Lighthouse Relay Voyage.&nbsp; Batten Disease is the main paediatric neuro-degenerative disease in the UK.&nbsp; A child affected by Batten Disease will be born apparently healthy before developing epilepsy, losing their ability to see, walk, talk and eat, as well as developing dementia, before dying a premature death. There is no cure.&nbsp; The BDFA supports affected families on their journey with Batten Disease, brings further awareness to the disease and facilitates research into the disease process in order to develop therapies and future treatments.</span></span></p> <p>Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</p> <p>So please dig deep and donate now.</p>

Donation summary

Total
£3,505.00
+ £377.50 Gift Aid
Online
£3,505.00
Offline
£0.00

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