Raised so far: £135.00
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Evie Beth Sugden was the inspiration behind the founding of Save Babies UK in 2008 by her grandparents Pat and Ken Roberts. Pat is my sister and when Evie became ill, aged 4 months old, it took several weeks for the doctors to identify the cause of her rare genetic illness. When Evie died of Krabbes disease, aged 11 months, in January 2002, Pat and Ken began to work hard to understand more about the condition that had taken Evie’s young life and, as they discovered, the lives of many other children across the world.

They discovered that research was further ahead in the USA and that treatments were being developed that, if commenced immediately at birth, may stop or slow down the progression of the disease. Ken began to use the internet to support the families living with, or bereaved through, Krabbes disease and in 2008, Pat launched Save Babies Through Screening Foundation UK.

More babies have died in the UK since Evie including Jack MacPherson. Wee Jack Mac was diagnosed with Krabbes at 6 months old and lost his fight age 21 months old in 2008. His mother Melanie is a Trustee of Save Babies and she is determined to work hard to try and get newborn screening extended in the UK so that babies’ lives might be saved.

Please read more about Wee Jack Mac and Evie and the work of Save Babies UK at www.savebabiesuk.org

This is my very first half marathon and I have been training hard to make sure I can succeed in making it across the finishing line and raising some much needed funds to help Save Babies work go from strength to strength.  

 Thank you for your support

 

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Only just got your email, so sorry this is late. Happy to support such a good cause Donation by Naomi and Stuart on 27/10/09

 
£10.00 + £2.82 Gift Aid
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Congratulations - sorry this is late but bltn! as they say. With our love, Ann & David Donation by David Morton on 14/10/09

 
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good luck, love Mel, Scott & Oliver Donation by melanie macpherson on 12/10/09

 
£10.00 + £2.82 Gift Aid
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Run Jackie Run !! Love from Fiona, Darrell & Gabriel Donation by Fiona Beck on 08/10/09

 
£20.00
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Go for it Jackie It will be worth all the pain! Donation by Ronni on 02/10/09

 
£10.00 + £2.82 Gift Aid
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Good luck Jackie! Donation by Saima Ali on 02/10/09

 
£10.00 + £2.82 Gift Aid
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Thank you Jackie for helping us to fundraise for Save Babies UK. I hope that you have a great day. Donation by Patricia Roberts on 30/09/09

 
£10.00 + £2.82 Gift Aid
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All the best Jackie. Donation by Dan Munday on 28/09/09

 
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Good luck Jackie!! Donation by Paul Sutcliffe on 28/09/09

 
£5.00 + £1.41 Gift Aid
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Good luck Jackie. Donation by Kathryn Dennick on 23/09/09

 
£5.00
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Best of luck with the run Donation by jeremy dale on 23/09/09

 
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Good luck Jackie. Rather you than me. Donation by Kenneth Roberts on 21/09/09

 
£20.00 + £5.64 Gift Aid
Donate now
 
* Total raised online: £135.00
  Offline donations: £0.00
  Mobile donations: £0.00
  Total Raised: £135.00
  Gift Aid plus supplement: £31.03

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Find out how much it is and what we do for it.