Thanks for visting this justgiving page set up by me Catherine for James Handley. This is around where my contribution ends as it will be James doing the long hard slog that is the Jersey marathon. The full 26 probably hilly miles - for those who have visited Jersey! I'll be proudly cheering from the sidelines on the 1st October 2011 as he pounds the streets for a charity we would both love to support.
The money raised is for Max Appeal – a charity for families affected by 22q.11 Deletion Syndrome (also known as Di George Syndrome and Velo-Cardio Facial Syndrome).
The syndrome is a complex condition and estimates believe that it affects 1:200 people. Some of the common symptoms include, heart defects, development delays, learning difficulties, palate problems, emotional, behavioural and psychiatric issues, kidney problems, neurological problems – in fact the list goes on and on......... there are over 180 related symptoms.
Our nephew Jude was diagnosed with the syndrome aged one - just before his open heart surgery and after a long period of ill health. He receives help with his learning and development and is looked after by three hospitals and a whole host of other professionals. Despite all his set backs, Jude is now a happy and healthy little boy. Sadly other children born with 22q DS are not as fortunate as Jude and never make it home from hospital or live with complex debilitating medical problems.
Max Appeal’s aim is to improve the quality of life for all those affected by the syndrome, to raise awareness of the condition and bring about permanent improvements in the social and medical care of those affected. Max Appeal is a small charity but is the largest in the world for this condition, income last financial year was just over £51,000; every donation makes a material difference to the work of the charity.
We would be extremely grateful if you would sponsor James and help this fantastic charity, which have been and continue to be a great support to my sister Trish and her husband Kev.
Thanks again for taking the time to read this and we'll post the pics on the 2nd! For those reading this in Ireland I'll be holding a coffee morning to boost the coffers- with details to follow....
James & Catherine
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
