My story

Thanks for taking the time to visit my JustGiving page.

A few words from Seth's dad about the work Anthony Nolan does and the impact they had on his family

 

In April 2008 Seth was diagnosed with a blood cancer called Acute Myeloid Leukemia. The day after he was diagnosed he started 6 months of Chemotherapy. He was two years old. During his treatment his Consultants carried out tests on the cancer to give an indication about how well the Chemotherapy was likely to work. Unfortunately the results were not good, the Chemotherapy was unlikely to be effective and he needed a stem cell (bone marrow) transplant to give him the best chance of a cure.  

Every one of us has billons of stem cells in the bone marrow inside our bones. These cells which produce all the blood in our body throughout our lives. The transplant aims to remove all of these cells, including the ones which are cancerous and replace them with new stem cells from a closely matching donor. The hospital searched databases worldwide for a donor, they were pretty hopeful that one would be found, however none were.  So without a donor Seth just had the Chemo to rely on.  

At the end of treatment initially the signs were good and we hoped he had got away with the slim chance he was given of the Chemotherapy working.  Sadly in January 2009 his cancer relapsed. He started more Chemotherapy and more searching of databases took place, no living donors had become available but thankfully the Anthony Nolan Trust found a lifeline for him. The stem cells from the umbilical cord of a baby born in Germany were a good enough match for him to have a transplant. The chemotherapy continued for a few more months, ending with a final dose which killed off all of his stem cells and with them we hope the cancer forever. 

 

On April the 19th 2009 23ml of blood rich with stem cells, were transplanted into him. This is a difficult point in the transplant process, the chemo had left him very unwell and with none of his own stems cells left to make blood, he relied upon daily blood transfusions for weeks to keep him alive. Eventually we started to see signs of the new stem cells beginning to work, but as they did a common side effect of the transplant also started, Graft vs. Host Disease. His new blood saw his body as a foreign object and began to attack it as if it was a virus. This caused the most horrendous pain, prevented him from eating and damaged his lungs, liver and gut.  He had IV morphine to manage the pain and was fed through a tube into his tummy and IV line for months.  

Very slowly he began to get better and after months in hospital was allowed home.  A year after the transplant he was still unwell, but he finally stopped being fed through the tube and was strong enough to go to playschool again. He has continued to recover and in September this year started school. He still has a few side effects and the time in hospital has left him a little shy compared to other children, but other than that he is a normal, happy little boy. 

If it were not for the kindness of a mother donating her babies umbilical cord and the Anthony Nolan Trust Seth would not be here today. Today there are over 2000 people in the UK who like Seth cannot find a donor. To help these people it's easy to join the register of donors, all it takes is a sample of spit and if you are lucky enough to be given the chance of saving someone's life through donating, it's as easy as giving blood.   

So please dig deep and donate now.

My charity

Anthony Nolan

Anthony Nolan

Charity Registration No. in England and Wales 803716, Scotland SC038827

Anthony Nolan is a pioneering charity that saves the lives of people with blood cancer. Every day, we use our register to match remarkable donors willing to donate their blood stem cells to people who desperately need lifesaving transplants.

Donations 114

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Happy Running.

Donation by jacq watkins on 05/03/11

£10.00

+ £2.82 Gift Aid

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Well done Jane - what you are doing is amazing. Love Claire & Martyn Weir

Donation by Claire Weir on 04/03/11

£10.00

+ £2.82 Gift Aid

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Crazy girl, Lucy! We'll be happily watching from the sidelines... See if you can beat Rob!! X

Donation by Sian on 03/03/11

£10.00

+ £2.82 Gift Aid

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Lucy - truely inspirational - what a wonderful, thoughtful thing you are doing. Well done babe. Will be thinking of you whilst I eat Chocolate!!!!!

Donation by Helen Bowsher on 03/03/11

£26.00

Donation by Daniela Seitz on 28/02/11

£10.00

+ £2.82 Gift Aid

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Good luck Jane, you're doing a wonderful thing. Will be cheering you through the tv on the day & trying not to cry like I do every other year I watch.

Donation by DeliciousNessy on 26/02/11

£5.00

+ £1.41 Gift Aid

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Good Luck Lucy, i'm sure you'll fly round in no time x x

Donation by Lindsay Austin on 21/02/11

£26.00

+ £7.33 Gift Aid

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Go for it girls I ran it last year - such an achivement - only tip make have plenty of family cheering you on at canary wharf its horrid that bit xxx

Donation by Vickieford85 on 18/02/11

£5.00

+ £1.41 Gift Aid

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Good luck Jane. You are doing a marvellous thing. Mich x

Donation by Michelle Twin Mum on 16/02/11

£10.00

+ £2.82 Gift Aid

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Well done guys, its a great thing you are doing. Sorry I cant be there to support you on the day, love Vicky xx.

Donation by Philip Barker on 14/02/11

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Go go zippy legs!!! You two are amazing.

Donation by Rachael Ruane on 14/02/11

£25.00

+ £7.05 Gift Aid

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Good luck Lucy so glad it is not me.

Donation by Julie Hamilton on 14/02/11

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hi jane just want to wish you lots of luck its a good thing you are doing love marl a bryn x x x

Donation by marlene jones on 08/02/11

£20.00

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Good Luck Pettit, we'll be there to cheer you on. Well done.!! You can do it. Rhian, Stephen and Bumpo

Donation by Rhian Eyre on 07/02/11

£25.00

+ £7.05 Gift Aid

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Great cause. Good luck Jane - people like you make the difference.

Donation by Omair Makhdumi on 07/02/11

£20.00

+ £5.64 Gift Aid

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All the best for the marathon - a very worthy cause. (From a friend of Gemma!)

Donation by Rebecca Luff on 31/01/11

£5.00

+ £1.41 Gift Aid

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WOW thats a surprise. Good luck on the run, no doubt ill be there to cheer you on. lots of love gem x

Donation by gemma blackmore on 31/01/11

£10.00

+ £2.82 Gift Aid

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Ever wonder why people devote time to raising money and awareness to worthwhile causes, then your child is the one suffering? Jane you're an Angel

Donation by John Jesson on 31/01/11

£50.00

+ £14.10 Gift Aid

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All the best...

Donation by James, Anna and Binkie on 31/01/11

£25.00

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Good luck Jane, I'll be thinking of you.

Donation by Nicola White on 31/01/11

£10.00

+ £2.82 Gift Aid

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Very best of luck x

Donation by Michelle Mannion on 31/01/11

£20.00

+ £5.64 Gift Aid

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Good luck with it Jane! With all our love the Pryces xxxx

Donation by Philip Pryce on 29/01/11

£20.00

+ £5.64 Gift Aid

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Good moves Janey

Donation by Sian Heath on 28/01/11

£10.00

+ £2.82 Gift Aid

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Good luck, great cause

Donation by Liz Lowe on 23/01/11

£10.00

+ £2.82 Gift Aid

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Good Luck Jane! It's a fabulous thing you're doing....ice those legs!x

Donation by Claire, Russ, Hannah and Georgia on 12/01/11

£20.00

+ £5.64 Gift Aid

Donation summary

  • * Online donations$3,753.60
  • Offline donations$0.00
  • Text donations$0.00
  • Total raised$3,753.60
  • Gift Aid$917.56

* Charities pay a small fee for our service. Find out how much it is and what we do for it.