Hi everyone. My name is Joanne and I have decided to take a huge leap and run Disneys half Marathon in Jan 2012 in Florida on behalf of ADDER. My Mam has suffered from Dystonia now for 10 years which has changed her life immensly. This charity is very very close to mine and my families heart. It affects the ability to do normal everyday tasks which we all take for granted and is a very dibilitating and stigmatizing disorder. No longer being able to work, drive and at one point her condition seriously compromised her health.
Dystonia is a little known neurological condition affecting the central nervous system and consists of a group of related movement disorders, characterised by involuntary and often very painful and prolonged spasms of muscle contractions. Recent medical developments means it is now treatable, although it is not yet curable. Different medications can be used but the majority of people now opt for regular injections of Botulinum Toxin which weakens those muscles in spasm thus giving temporary relief, usually lasting about 12 weeks.
This disorder has made my Mam a much stronger person, she also has made some amazing life long friends through this and they fight Dystonia together.She really has been an inspiration to our family and others with dystonia, Having raised awareness by naming Dads horse Dystonia's revenge and it's won a few times. She always offers help to others with the disorder from all over the world.
I am hoping to raise money for ADDER and to promote awareness and encourage research amongst the medical profession of the neurological conditions known as Dystonia.
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
