When I write this I am still in grieving.
I found out that I have PKD just a month ago. I knew my mom had it but I always thought that I am still young. I thought maybe I have 1 or 3 cyst. Not that I am full of them, as my doctor said:(
So over night I lost my future. I had all those plans what I will do when I am older.
I find it very hard to live with the knowledge that I know HOW I will die and almost WHEN.
It has already started , with the high blood pressure. They say u have 20 years left after the first symptom :(
I find it very hard to live with the knowledge that I know HOW I will die and almost WHEN.
I know that this is in me and there is nothing I can do about it, to make it better.
They are very close to finding a medicine. Something that can slow the process down. That for me would mean everything.
At the moment it just feels there is no hope. No light at the end of the tunnel.
I climbed Snowdon yesterday and today I cant walk:P ehhe, it was sooo hard. 3 hours constant climb and 3 hours back.
It was the most hardest and beautiful experience.
Thank you very much:)
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