Story

Please note that the event date has been changed to 09 Jan 2011.

Thanks for taking the time to visit my JustGiving page.

Just over a year ago we lost our son Riyan; following his passing it took the coroner 3-4 months to conclude that Riyan had Infantile Dilated Cardiomyopathy. However it still remains a mystery as to how Riyan had a form of the illness; all tests carried out were inconclusive!

Riyan was born healthy and remained healthy for 5 weeks showing no signs of sickness until one day he suddenly fell ill and so began the worst week of mine and Ekta’s life. Riyan battled hard against cardiomyopathy for a week until his body could not cope with the condition any longer.

Cardiomyopathy is the poor condition of heart muscle that affects 1 in 500 of the population and is the number one cause of sudden death in those aged under 35. In Riyans case little was known on how to treat this illness as the doctors treating Riyan simply did not know what was wrong with him!

When we found out that Riyan had a form of Cardiomyopathy we were introduced to an organisation called the Cardiomyopathy Association (CMA). It was through this organisation that we learnt more about Cardiomyopathy and how limited treatments are for various forms of the illness. CMA provides information and support to affected families; helps educate health professionals about the condition and campaigns for medical and government action. From our experience there is still a long way to go especially treating babies with this condition, more research and expertise is required to treat Cardiomyopathy!

I’m therefore raising money to support the CMA by taking part in the Edwinstowe  Christmas 10K Forest Trail Race. All contributions no matter how big or small would be very much appreciated.

Kal

 

 

Raising money for

Cardiomyopathy Association

Cardiomyopathy Association

Charity Registration No. 803262

We are the charity for everybody affected by heart muscle disease (cardiomyopathy). We help with free support and information. We campaign for greater awareness. We want everybody affected by cardiomyopathy to get the best treatment and care. Join families fighting heart muscle disease!

Donations 120

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eh up. Well done recently.

Donation by Dominic Brady on 17/01/11

£5.00

+ £1.41 Gift Aid

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Well done on finishing the race :)

Donation by Lisa Clarke-Lens on 09/01/11

£10.00

+ £2.82 Gift Aid

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Good Luck Kalpen. All the best for the run.Love, Mash masa, Bharti masi, Reena and Ricky.xxx

Donation by Reena Sudra on 09/01/11

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Good luck Kal - i'll see you at the start line on Sunday.

Donation by ian nisbet on 07/01/11

£20.00

+ £5.64 Gift Aid

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Good luck Kal, well done on the fundraising, you've done a fantastic job. Hope to catch up with you soon, Lorna and Matt xx

Donation by Lorna Patrick on 06/01/11

£25.00

+ £7.05 Gift Aid

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Wishing you all the best for the run and we're all very proud of what your doing! Run for Riyan and run faster Kaka, love Ayush and Aashi xx

Donation by Dad, Mum, Bhaven, Aarti, Ayush & Aashi x on 28/12/10

£101.00

+ £28.49 Gift Aid

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Good Luck KP!!!! we're all rooting for you xxx

Donation by Heena Vaja on 13/12/10

£10.00

+ £2.82 Gift Aid

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Good Luck Kalpen is all for a very good cause xx

Donation by Samantha Hoy on 10/12/10

£20.00

+ £5.64 Gift Aid

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Good luck Kalpen. Ekta- cheer Kalpen on!

Donation by Ambarish Patel on 04/12/10

£15.00

Good Luck KP!! Riyan will always be in out hearts forever!!!luv Sian,sim,sereena,shree,tuli,manju xx

Donation by manju vaja on 01/12/10

£30.00

+ £8.46 Gift Aid

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Wish you all the best Kalpen and hope that it makes a difference. RIP Riyan xx

Donation by Purnita Vaja on 01/12/10

£10.00

+ £2.82 Gift Aid

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All the best Kalpen, May Riyan's Soul rest in eternal peace. From Anshi Riddhi Hitesh Deena xx

Donation by Deena Padhiar on 30/11/10

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Donation by Anonymous on 30/11/10

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I wish you the best of luck Kapi for this very good cause. Best wishes Maya, Kyan and Eesha. xxx RIP baby Riyan

Donation by Maya Padhiar Vaja on 30/11/10

£10.00

+ £2.82 Gift Aid

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For Riyan...Good Luck Kal! Love & best wishes Nat, Shushma, Rajiv, Jemma, Reeya & Jai xxx

Donation by Shushma Vaja on 30/11/10

£10.00

+ £2.82 Gift Aid

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Wishing you the best of luck and long may you be able to keep up the charity fund raising for this charity.

Donation by Franca Hyder on 30/11/10

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Run for our Riyan, Kapi. Wishing you the very best. It's for a good cause and I'm sure our lil one will appreciate it wherever he is. Bless his soul.x

Donation by Akta Padhiar on 29/11/10

£100.00

+ £28.21 Gift Aid

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Best of luck Kapi.... Run for Riyan!! Luv Nisha and Hitz xxxx

Donation by Nisha Gajjar on 29/11/10

£20.00

+ £5.64 Gift Aid

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Good luck kp.

Donation by vinay vaja on 29/11/10

£10.00

+ £2.82 Gift Aid

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Good Luck Kalpen!!!

Donation by Nilesh, Nima, Nira, Roshni and Kishan on 29/11/10

£10.00

+ £2.82 Gift Aid

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Well done on raising so much Kal! I'll be with you for the pain on Sun!

Donation by Sarah Holland on 29/11/10

£10.00

+ £2.82 Gift Aid

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Donation by Brian Hyman on 29/11/10

£10.00

+ £2.82 Gift Aid

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Donation by deepal nakum on 29/11/10

£10.00

+ £2.82 Gift Aid

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All the best KP, Love Vims, K & Vera x

Donation by Vimal Padhiar on 28/11/10

£50.00

+ £14.10 Gift Aid

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Good Luck, god bless you all.

Donation by Bhirutta Vaja & Hemel Vaja on 26/11/10

£15.00

+ £4.23 Gift Aid

Donation summary

  • * Online donations£2,259.00
  • Offline donations£543.00
  • Text donations£0.00
  • Total raised£2,802.00
  • Gift Aid£484.56

* Charities pay a small fee for our service. Find out how much it is and what we do for it.