My story

Damon Elson, Andy Day William Harrison, Tom Campbell, Rob Platt, Ben Moore, Ben Philipp and I decided to do our bit for charity. A charity that has always been close to my heart is the MPS Society that helps thousands of people thoughout the world who suffer from mucopolysaccharide diseases, very rare conditions.

I suffer from MPS II or Hunters Syndrome, so I was inspired to do my bit to support the charity to repay them for the help that they have given me and to give other children, with similar conditions to me, the chance to have the best opportunity of living a normal life.

Your donations will help the charity in many ways, these include:

  • to provide support to individuals affected by Mucopolysaccharide and related diseases, their families and the professionals who care for them
  • to increase awareness of Mucopolysaccharide and related diseases amongst health care, social care and education professionals
  • to extend this to the community at large to secure improved local services and inclusion for affected children and adults and their families
  • to raise funds for research into Mucopolysaccharide and related diseases that may lead to improved clinical care, quality or life and new therapies.

This is a very worthy cause that are providing people like me with a better shot at life through Enzyme Replacement Therapy (ERT) (of Elaprase® for MPS II and Aldurazyme® for MPS I) and Bone Marrow Transplants etc.

Please do donate and make a difference to someone's life, by doing so there can be "Care today" for sufferers and "Hope Tomorrow" for their future.

(If unsure about whether to donate, please visit the MPS Society website for additional information - http://mpssociety.co.uk/)

My updates 1

I would like to thank everyone who has already shown so much support for our team. We are so close to our £2000 target which, honestly, I didn't think we would achieve. If you haven't already donated please do, and if you have then please continue to support this wonderful cause.

10/04/12 22:21

My charity

The Society For Mucopolysaccharide Diseases

The Society For Mucopolysaccharide Diseases

Charity Registration No. 1143472 and Scotland SC041012

The MPS Society provides professional support to children, adults and families affected by MPS and related Lysosomal Storage Diseases and funds research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions.

Donations 55

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What an amazing achievement! You are INCREDIBLE! I had no idea you were doing this. WELL WELL done! Much love Rosemary xx

Donation by Rosemary Pointon on 13/06/12

£20.00

+ £5.00 Gift Aid

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Well done to you all. (Have just got back, apologies for not responding sooner.) Congratulations !

Donation by Monica and Adrian on 24/04/12

£20.00

+ £5.00 Gift Aid

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Tom and friends, well done on the ride!

Donation by Chris Laurens on 21/04/12

£134.00

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Awesome!

Donation by The NY Gordons on 20/04/12

£100.00

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Congrats on the ride and the amount of money you guys have raised, great achievement.

Donation by Alastair Scott on 20/04/12

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Respect!! Well done- love from the thomas family in Singapore xx

Donation by fleur thomas on 20/04/12

£100.00

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Well done Tom and your friends! A huge effort- a great cause and a fantastic amount of money raised! What an achievement!

Donation by Leon , Konrad, Sebastian and Aniela on 17/04/12

£20.00

+ £5.00 Gift Aid

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Well done to Tom and friends. I assume you made it there and back great effort!

Donation by The Grays on 17/04/12

£20.00

+ £5.00 Gift Aid

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Good Effort from the Deverells!

Donation by sarah deverell on 16/04/12

£20.00

+ £5.00 Gift Aid

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Well done everybody!

Donation by Jonathan and Louise Moore on 15/04/12

£20.00

+ £5.00 Gift Aid

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Well done Tom and team. An amazing achievement!! Best of luck with your GCSE exams

Donation by John, Patricia, Laura Christopher Naomi on 15/04/12

£50.00

+ £12.50 Gift Aid

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Well done Rob! Really proud of you. Congratulations on your success.

Donation by Rebecca St Johnston on 14/04/12

£20.00

+ £5.00 Gift Aid

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Well done on a great ride, and an excellent effort from you and all your friends.

Donation by Nigel Platt on 14/04/12

£108.00

+ £27.00 Gift Aid

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well done, Louis, with all the mileage, hailstones and technical challenges on the way - a real achievement!

Donation by Caroline Burvill on 14/04/12

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Congratulations Louis and the Team - a fantastic effort and we are very proud of you. Grandpa and Tattie

Donation by Caroline J Garthwaite on 14/04/12

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Well done!... Jolly good!!

Donation by Tim Parker on 13/04/12

£20.00

+ £5.00 Gift Aid

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Great effort - Well done all of you!!! - from the Overenders....

Donation by Henry Garthwaite on 12/04/12

£50.00

+ £12.50 Gift Aid

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Tom & Co - Great effort & hope you enjoy the ride.

Donation by Baptys on 12/04/12

£25.00

+ £6.25 Gift Aid

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Good Luck Louis to you and your team. Hope it goes well and you have fun doing it to. All the best Pip, Jerry, Dan, Nick and Matt.

Donation by Pip Humphreys on 12/04/12

£20.00

+ £5.00 Gift Aid

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Great effort Louis and Friends.

Donation by charles jacobs on 11/04/12

£100.00

+ £25.00 Gift Aid

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Will & cycle team RGS, Wishing you all a trouble free journey. Great work!

Donation by Mark Harrison on 11/04/12

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Louis, really impressed. Hope your determination helps push you all the way through. Very proud. Choi and I will have to visit soon.

Donation by Robert Thomas on 11/04/12

£30.00

+ £7.50 Gift Aid

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How amazing... we'll be thinking of you. Hope it goes really well. Love all of the Wilkinsons xx

Donation by Rob & Nicky on 11/04/12

£40.00

+ £10.00 Gift Aid

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Sending you sunshine and well wishes from sunny California Louis. May you feel strength, purpose and inspiration! So excited for you!

Donation by Nicola Eaton & Michael & Gabriel Guinn on 11/04/12

£20.00

+ £5.00 Gift Aid

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Good luck guys - be safe - have fun and push through the pain

Donation by Tim Day on 11/04/12

£50.00

+ £12.50 Gift Aid

Donation summary

  • * Online donations$4,211.96
  • Offline donations$1,494.76
  • Text donations$19.82
  • Total raised$5,726.55
  • Gift Aid$767.44

* Charities pay a small fee for our service. Find out how much it is and what we do for it.