My story

Thanks for taking the time to visit my JustGiving page.

 

I was diagnosed with MG when I was 14 and have had varying symptoms, relapses & various treatments for 12 years now; including major surgery at the beginning to remove my thymus gland & now daily doses of different drug treatments to keep the symptoms at bay. It’s a really frustrating condition – and even if I get the slightest infection it can upset the delicate balance and set off the MG which means that there are times for instance when maybe I can’t smile properly or perhaps raise my arms above my head to wash my hair or move my legs enough to climb the stairs – simply because those muscles won’t work. The scariest time for me was when my breathing muscles collapsed and I ended up in ITU on a ventilator for 10 days, but that didn't hold me down for too long! 


I have been lucky enough to be in the care of an amazing neurologist based in Oxford under the NHS since I was 14 and I still find it difficult to explain what MG is..so bare with me while i do.

 

Myasthenia gravis (MG) is a chronic, autoimmune disease that causes muscle weakness and excessive muscle fatigue. It is uncommon, affecting about 15 in every 100,000 individuals in the UK. The disease can vary in severity and distribution of weakness between individuals, and in any one patient the symptoms fluctuate with relapses and remissions. Myasthenia gravis can resolve spontaneously, but for most patients myasthenia gravis persists for life.  It can be life threatening, but 90% of patients become symptom-free with modern treatments.

 

It doesn’t have a high profile & as far as I am aware nobody famous has it. But that doesn’t mean that the charity doesn’t need your support; to find the causes, better and alternative treatments & always with the hope of eradicating it altogether.

 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

 

My updates 14

Hurting so much today but well worth it - thanks to all who have supported it means so much. If you still want to sponsor us, you can do up until the 6th June! Thank you all!! x

07/05/12 09:50

We did it!!!!!!!

06/05/12 18:18

Eeeeeeeeeeeeeek 1 more sleep!!!

04/05/12 09:18

2 sleeps..............!!!

03/05/12 09:50

I just can't quite get my head round all the support,i am a bit soppy but i have to say it makes me well up just thinking about it as it means so much to me...so thankyou everyone from the bottom of my heart x

02/05/12 20:32

My charity

Myasthenia Gravis Association

Myasthenia Gravis Association

Charity Registration No. 1046443

Myasthenia Gravis is an auto-immune disease which is characterised by fluctuating and sometimes fatal, muscle weakness. It affects all ages and both genders. The charity aims to aid the discovery of improved diagnostic techniques and better treatment - ultimately to find a permanent cure for Myasthenia Gravis and similar disorders of the nerve-muscle junction.

Donations 79

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Go Lucy! You are undertaking a courageous challenge and are raising money for such a worthy cause; you are a true inspiration to the rest of us. Xxxx

Donation by Georgina Wainwright on 18/04/12

£20.00

+ £5.00 Gift Aid

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Hi Lucy, fantastic what you are doing for a worthwhile charity. We will be cheering you along, all the way from Denmark. Don't forget the Compeed.

Donation by Peter & Fiona Bays on 17/04/12

£20.00

+ £5.00 Gift Aid

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nice one lucy - good luck!

Donation by nigel fluet on 17/04/12

£10.00

+ £2.50 Gift Aid

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Hi Lucy, all the very best and have fun on the walk, it is for a great cause which as you rightly say needs more publicity. Go for it!

Donation by Stuart and Alison Wallace on 16/04/12

£25.00

+ £6.25 Gift Aid

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What an amazing thing to do! Good luck Lucy. XXX

Donation by Lesley Moffat on 16/04/12

£10.00

+ £2.50 Gift Aid

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Good luck Lucy. Jenni & Bill xx

Donation by Jenni Braithwaite on 13/04/12

£5.00

+ £1.25 Gift Aid

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Good Luck Lucy

Donation by Trevor Matthews on 13/04/12

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Lucy, Best of Luck to you and the rest of the team walking......Mick

Donation by Michael Johnson on 13/04/12

£25.00

+ £6.25 Gift Aid

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Hi there. Good luck everyone

Donation by Stephen Lovejoy on 13/04/12

£20.00

+ £5.00 Gift Aid

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I know it's not much but it truly is a worthy cause.

Donation by alex cowell on 12/04/12

£10.00

+ £2.50 Gift Aid

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Best of luck Lucy!

Donation by Alastair Divers on 12/04/12

£10.00

+ £2.50 Gift Aid

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Good luck to you all!!

Donation by James Hankers on 12/04/12

£10.00

+ £2.50 Gift Aid

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Good Luck Guys and happy walking! All for a great cause.xx

Donation by Vicky Brown on 12/04/12

£10.00

+ £2.50 Gift Aid

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Good luck to you and the team! X

Donation by joe redmond- RTS on 12/04/12

£15.00

+ £3.75 Gift Aid

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Never even heard of this condition - until now! Good luck to you and your team!

Donation by Jan Friend@Biffa, High Wycombe Depot on 11/04/12

£5.00

+ £1.25 Gift Aid

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Good Luck Lucy - you'll smash it!! love from Jennie, Ian and Seren xxx

Donation by Jennie Francis on 09/04/12

£10.00

+ £2.50 Gift Aid

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Goodluck Becky and team :) x

Donation by Kristina Newton on 04/04/12

£10.00

+ £2.50 Gift Aid

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Good Luck! x

Donation by Dawn Andrews on 03/04/12

£10.00

+ £2.50 Gift Aid

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Good luck Lucy! From Emma and Morten.

Donation by Emma Heywood on 03/04/12

£10.00

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Lucy, Love from David, Alwyn, Emma and Heidi. Hope to see you soon - come and see Woody ! Good Luck with the walk!

Donation by David Whitaker on 03/04/12

£50.00

+ £12.50 Gift Aid

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Love & Good Luck from Gramps & Barbara : Best foot forward and make sure you take plenty of alcohol (for rubbing sore muscles of course !)

Donation by Gramps and Barbara on 03/04/12

£50.00

+ £12.50 Gift Aid

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Good luck Lucy,say hello to your dad for me

Donation by christopher clegg on 03/04/12

£50.00

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Well done Lucy! xxxx

Donation by Gillian Cook on 02/04/12

£20.00

+ £5.00 Gift Aid

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Good luck Lucy!

Donation by Judith Williams on 02/04/12

£10.00

+ £2.50 Gift Aid

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Good luck Luce- very very proud of you and you're work mates xxx

Donation by on 02/04/12

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations$3,119.37
  • Offline donations$228.72
  • Text donations$0.00
  • Total raised$3,348.09
  • Gift Aid$558.46

* Charities pay a small fee for our service. Find out how much it is and what we do for it.