Updated on Feb 22nd 2011 at 8:21 AM from the JustGiving API

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Updated on Feb 22nd 2011 at 8:21 AM from the JustGiving API

Thank you

Thanks for taking the time to visit my JustGiving page.

Im raising money for Alpha 1 Awareness by clibing Kilimanjaro in August.

 Alpha 1 is an autosomal codominnant genetic dissorder caused by defective production of alpha 1-antitrypsin (A1AT), leading to decreased A1AT activity in the blood and lungs, and deposition of excessive abnormal A1AT protein in liver cells. There are several forms and degrees of deficiency, principally depending on whether the sufferer has one or two copies of the affected gene. Severe A1AT deficiency causes panacinar emphysema or COPD in adult life in many people with the condition (especially if they are exposed to cigarette smoke), as well as various liver diseases in a minority of children and adults, and occasionally more unusual problems. It is treated by avoidance of damaging inhalants, by inavenous infusions of the A1AT protein, by transplantation of the liver or lungs, and by a variety of other measures, but it usually produces some degree of disability and reduced life expectancy.

unfortunately my sister is a sufferer of A1 as well as various other problems, im trying to raise money to help fund reserch into the condition and help find a way to make sufferers lives more berable and hopefuly find a cure, its taken 7 years to get an answer to what is wrong with my little sister as most Docters have no knowledge on A1. To many people have died due to ignorance and neglect because A1 is not known and barely any ones knows how to accept it or care for a sufferer, we may not raise much money, but we need to raise awarness, A1 is a growing condition and more people are being diagnosed without rescerch there will be no hope for any sufferers in the future, A1 is something most people need to be tested for, it often gets diagnosed as asthma. To many people get shoved to the end of the que and ignored when a simple blood test can rule it out, but because its not common its never tested for, without the help of internet and charitys we would still be looking for a answer today and Chloe would never of got the treatment she needs.

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