Story
My 14 year old son Luke has recently been diagnosed with Tourette Syndrome. I believed as I am sure many people who haven’t had firsthand experience of this disorder thought it was all about swearing when in fact Coprolalia the given name for the swearing aspect of Tourette Syndrome only affects 10% of TS cases. My son has verbal and motor tics which he struggles to control throughout the day and night. Tourette Syndrome is a neurological disorder that affects the person with the condition much more than it affects those around them. I am therefore running the London marathon to try and raise awareness of this very misunderstood condition.
Luke has taken this very brave step by allowing me to make it known to people he has Tourette Syndrome, which for him the decision has taken as much strength as I will need to complete the 26 miles.
I need to raise a minimum of £1600 which is the only condition of my entry through Tourettes Action with all the donations going to the charity. Any ideas for fundraising will be greatly appreciated as will all donations.