My story

On Sunday 27th May I will be heading a team from the Centre for Neuromuscular Diseases at Queen Square taking part in the BUPA London 10,000 for the 4th year in a row to raise funds for The National Brain Appeal [formally the National Hospital Development Foundation (NHDF)]. All money received will support research into serious muscle wasting neurological diseases in the Centre for Neuromuscular Diseases.

 

This year is particularly special as I plan to run with one of my patients Bill. Following successful treatment for muscle weakness which made it difficult for him even to walk, he can now run again and is celebrating by tackling the 10k!

 

The National Brain Appeal, the charity dedicated to raising funds for the hospital, worked with me over the last two years and we were successful in opening the UK’s first comprehensive Centre for Neuromuscular Diseases in Dec 2009. The new centre at 8-11 Queen Square has brought together the entire team of Queen Square experts in these fields, led by myself. It includes a clinical trials facility and IT systems to support the development of new treatments and facilitate translational research to benefit patient. The centre is a truly unique environment supporting young scientists to develop research programmes to find treatments for these serious diseases.

 

We urgently need to raise funds to support important clinical research in the new centre and in particular to support young scientists we are training. We have already raised funds for two young scientists. We had one hundred applications for these two posts and we would like to give a larger number of talented young scientists the opportunity to do research in these diseases in our new centre. So far we have raised £120,000 and I am personally committed to raising £1million towards a comprehensive programme for talented young scientists to join our team and help us drive the research to find treatments.

 

As you may be aware, neuromuscular neurological diseases are serious muscle wasting disorders which often affect children and young adults. There are over 100 neuromuscular diseases and common examples include Motor Neurone Disease, Polymyositis, Inclusion Body Myositis, Peripheral Neuropathy, Myaesthenia Gravis, Muscular Dystrophy and other life threatening diseases. They affect well over 100,000 people in the UK. For many of these diseases we still don’t have cures and we want to change this read more at www.cnmd.ac.uk

 

We do hope you will be able to support us and any donation, no matter how small, will be gratefully received.

 

 

My charity

The National Brain Appeal

The National Brain Appeal

Charity Registration No. 290173

The National Brain Appeal (formerly the National Hospital Development Foundation) is the charity dedicated to raising funds for The National Hospital for Neurology and Neurosurgery in London, one of the world’s leading neurological centres.

Donations 155

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With thanks.

Donation by Clive Leach & Diana Ross on 29/01/13

£200.00

+ £50.00 Gift Aid

Donation by Anonymous on 12/11/12

£200.00

+ £50.00 Gift Aid

Donation by Anonymous on 07/08/12

£10.00

+ £2.50 Gift Aid

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Please let me know if you plan to do this again next year, as a CMT patient seen by your team I'd love to join your running team!

Donation by Donna D on 06/08/12

Donation by Ruth Jackman on 31/07/12

£50.00

+ £12.50 Gift Aid

Donation by Barry Coomber on 04/07/12

£200.00

+ £50.00 Gift Aid

Donation by Giancarlo Trinca on 29/06/12

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Donation by Caroline Bartholomew on 26/06/12

£10.00

+ £2.50 Gift Aid

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Donation by Alessandra Molinari on 20/06/12

£30.00

+ £7.50 Gift Aid

Donation by Oliver London on 19/06/12

£100.00

+ £25.00 Gift Aid

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Dr Hanna i would like to thank you for the way you treated me when I visited the hospital last year. I wish you good lack in your research project.

Donation by Ourail Ourailidis on 19/06/12

£500.00

Donation by Rosemarie Downey on 18/06/12

£80.00

Donation by Catherine Fowler on 16/06/12

£25.00

+ £6.25 Gift Aid

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Apologies for the late donation. Congratulations - I wish I could have run with you. Keep up the good work. Best wishes - Trevor and Susan Symonds

Donation by Trevor Symonds on 16/06/12

£25.00

+ £6.25 Gift Aid

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Donation by Tim Pennington on 15/06/12

£10.00

+ £2.50 Gift Aid

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Dear Amanda, congrats. Sorry for the delay. And a bigwell done to the whole team all the best with your cause.

Donation by Pinelopi Talelli on 15/06/12

£10.00

+ £2.50 Gift Aid

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I'm sorry I couldn't donate the millions you are looking for.

Donation by Sarah Leader on 14/06/12

£20.00

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GOOD LUCK AND KEEP UP THE GOD WORK!!!

Donation by MARK COREY on 14/06/12

£10.00

+ £2.50 Gift Aid

Donation by michele laura on 13/06/12

£20.00

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Well done - keep on running.

Donation by Angela Franks on 13/06/12

£10.00

+ £2.50 Gift Aid

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Very good effort Michael and the Team. Incredibly worthy cause and I admire your fundraising efforts.

Donation by Rhys Davies on 13/06/12

£10.00

+ £2.50 Gift Aid

Donation by Anthony Beauchamp on 13/06/12

£20.00

+ £5.00 Gift Aid

Donation by Graham Crame on 12/06/12

£10.00

+ £2.50 Gift Aid

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One of Dr Reilly's patients. Good luck.

Donation by Jennifer Osborn-Jones on 11/06/12

£10.00

+ £2.50 Gift Aid

Donation by Anonymous on 11/06/12

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations£8,551.00
  • Offline donations£3,096.00
  • Text donations£0.00
  • Total raised£11,647.00
  • Gift Aid£1,890.25

* Charities pay a small fee for our service. Find out how much it is and what we do for it.