On the 27 of April 2014 a team of colleagues from Ashridge Business School are taking on the immense challenge of running the equivalent of London to Edinburgh on a single calendar day. The team of 30+ colleagues who have registered on the Shakespeare Full and Half marathons are taking on this mammoth challenge in aide of a young boy called Noah, who has Cerebral Palsy and has been offered the chance of a life changing operation in America which could help him walk. Noah’s dad who is from North West London and works at Ashridge has been overwhelmed by the support of his colleagues who have rallied round to support this amazing cause. The distance covered by the team will span the length of England all the way to Edinburgh in Scotland, the home capital of Noah’s mum Jeanette who’s from Livingston near Edinburgh.

 

Noah’s story:

 

Hi, my name is Noah. I’m four years old and I live with my mummy, daddy and two sisters. I was born just over nine weeks early and spent the first five weeks being looked after by the great people in the special care baby unit. Due to my early arrival I have had a few more challenges than most children my age, however I have done very well in overcoming them. I’m a smart, happy little boy with a great spirit and have lots of love for others. The biggest challenge that I face now in my everyday life is living with a condition called Cerebral Palsy, which causes spasticity in my legs that can be uncomfortable and makes balancing and getting around hard for me.

 

My daddy and I work hard every day to try and keep the flexibility that I have and to also build up my strength. With concentration and effort I’m proud to say that I can walk small distances with my walking frame, however the doctors believe that as I get older I will lose that ability and have to use my wheel chair all the time. Although I love my cool wheel chair, I really want to be able to walk around as well.

 

That’s where my great news come in. I have been accepted by a childrens hospital in America to have a potentially life changing operation called Selective Dorsal Rhizotomy (SDR). The operation will permanently remove the tightness in my muscles that is caused by the Cerebral Palsy, instantly make my life more comfortable. As well as that I can expect to have better balance, improvements in my sitting and standing, to be able to move around easier and faster and if I work really hard I might be able to walk. All of these improvements are permanent, so I will benefit from them every single day of my life.

 

Unfortunately the operation and follow up treatment costs a lot of money, however mummy, daddy and my friends and family are all going to work hard to try and raise the money I need…. If you are able to donate anything to help them, they will forever be grateful…. because they love me with the whole of their hearts.

 

 

 

Thank you

 

Noah

 

 

Should we exceed the target amount (or if we do not raise enough funds, or if they cannot be used for any other reason) the funds raised will go to the general funds of Tree of Hope to assist other sick children.

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