My story

Myositis affects thousands of people in the UK, young and old. It can be life threatening, and almost always disabling. However, it is still relatively rare and does not attract the funding that more common illnesses do.

The Myositis Support Group is the only UK Charity that concentrates on this crippling condition, providing support for sufferers, and funding for research. The Group has already donated many thousands of pounds for research projects, but this only scratches the surface of the problem. We need to do more – there is still no cure, and in many cases no treatment either.

By donating to the group you can be assured that your money will go where it is needed; this is a small charity which spends only a minimum on administration. Your money goes to where it is needed the most - research and support.

I am inspired by an amazing family living with the effects of Myositis, they never complain. Furthermore they give so much back to the community in which they live.

Please give what you can to fund more research and help amazing people.

Thank you

My gallery 10

My updates 5

It was a truly amazing day, fantastic support and incredible atmosphere. I am delighted with my time of 4.36.08 hrs. 2 blisters and 1 very happy lady!

23/04/12 17:41

It was a truly amazing day, fantastic support and incredible atmosphere. I am delighted with my time of 4.36.08 hrs. 2 blisters and 1 very happy lady!

23/04/12 17:41

My running log Oct 2011-April 2012! 98 runs, 99 hours = 560 miles!

16/04/12 12:17

My vest number is (red) 43734

16/04/12 10:47

Less than a week to go and i am so excited! The training has been long, exhausting and at times frustrating but i have gained and learnt such alot. I am truly humbled by the lovely messages and the volume of money raised for this great support group.

16/04/12 10:46

My Teams

My company

My charity

Myositis Support Group

Myositis Support Group

Charity Registration No. 327791

The Myositis Support Group is a UK charity providing advice and support to sufferers of Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis and their families. The MSG also funds and promotes medical research that improves diagnosis, treatment, management and understanding of these diseases.

Donations 114

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Good luck mush. Get those knees up. x

Donation by Anthony West on 26/12/11

£20.00

+ £5.00 Gift Aid

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Read about this in the Kenley Financial news letter. A very worthy cause. Wishing you every success in your training & and in the 2012 London Marathon

Donation by Roger Easter on 18/12/11

£15.00

+ £3.75 Gift Aid

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Keep running - good luck - from the McMillan Clan!

Donation by Hamish McMillan on 14/12/11

Have great experience of dealing with blisters if you need a medical team !! Keep on running

Donation by Kim, Nigel, Jenna and Matthew Nicolls on 06/12/11

£20.00

+ £5.00 Gift Aid

Best of luck from another of Chris's (many) nieces x

Donation by Ros Stanley on 05/12/11

£10.00

+ £2.50 Gift Aid

Best of Luck Wonder Woman!!! Lots of Love Emma,Gary,Jamie& Honor xxxx

Donation by Emma Richards on 05/12/11

£20.00

+ £5.00 Gift Aid

Good luck! Chris Stanley's niece Anna! Thank you xxx

Donation by anna hall on 28/11/11

£20.00

+ £5.00 Gift Aid

Good luck Sarah. x

Donation by Jill Glass on 28/11/11

£10.00

+ £2.50 Gift Aid

We're completely in awe of you - well done Sarah from The Mondo's xxxx

Donation by Wendy Coleman on 23/11/11

£25.00

+ £6.25 Gift Aid

Good luck Sarah.

Donation by David, Stephanie & Emma Friend on 23/11/11

£50.00

+ £12.50 Gift Aid

Good luck

Donation by Susan Skelly on 22/11/11

£25.00

+ £6.25 Gift Aid

Go Sarah, I will be with you in spirit....(but tucked up in bed with a coffee watching it on TV)

Donation by Tim Deadman on 22/11/11

£20.00

+ £5.00 Gift Aid

Good luck with your training Sarah!

Donation by Lynn & Chris Stanley on 09/11/11

£50.00

+ £12.50 Gift Aid

You go for it girl. Are you running as wonder woman?

Donation by Dave Earle on 05/11/11

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations£2,593.40
  • Offline donations£265.00
  • Text donations£0.00
  • Total raised£2,858.40
  • Gift Aid£526.80

* Charities pay a small fee for our service. Find out how much it is and what we do for it.