My story

Hi, I'm Skye, I'm 3 and I live in Cheltenham.

When I was born I weighed less than a bag of sugar, just 880g.  I was born at 27 weeks but no-one really knows why I was so early.  Everything seemed to be going well for me but then my physio started to pick up on some patterns of movement I had which were slightly worrying.  She continued to monitor me and work with me until she was sure.  Eventually the paediatrician confirmed it - I have Spastic Diplegic Cerebral Palsy.

Since my diagnosis in June 2011 life has been very busy - I've been into hospital for Botox injections, I have an extensive physio regime and I'm being considered for major surgery called SDR.  Although I can walk, I've also got a funky pink and purple wheelchair to help me when walking a long way as I tire very easily.

Don’t think for a moment that my diagnosis holds me back – I am a very determined young lady (mum says I’m stubborn!) and I will persevere until I succeed.  I love climbing and have just learned to jump.  However, my legs annoy me because they don’t do what I want them to do and I get really frustrated!  

The SDR operation could help me so much!  It will reduce the spasticity in my leg muscles and make it easier for me to move around. It is also very likely that, without SDR, my leg bones will twist as I grow, requiring a major orthopaedic operation when I am 11 or 12 to de-rotate my legs and reattach the muscles in a better position. SDR has been carried out for many years in the US with great success.  However, NICE, the UK body that approves medical procedures, has not found the operation meets its standards due to a lack of long-term research data in the UK. This means that the operation will probably not be funded by the NHS.

Please help me to reach my full potential, without my legs getting in the way!  Every penny will help me get closer to my dreams.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure.  Your details are safe with JustGiving - they'll never sell them on or send unwanted emails.  Once you donate, they'll send your money directly to the charity and make sure Gift Aid  is reclaimed on every eligible donation by a UK taxpayer.  So it's the most efficient way to donate - I raise more, whilst saving tima and cutting costs for the charity.

So please dig deep and donate now.

My gallery 4

My updates 3

Thank you, thank you, thank you. We are so grateful and humbled. We are 20% of the way in just 8 weeks. Thank you.

11/10/12 16:36

An eighth of the way in 6 weeks! We are amazed, astounded and so, so grateful! So many of you have chosen to remain anonymous, leaving us no way to thank you. But please, please know how grateful we are! You are all such wonderful people! R, J and S xxx

28/09/12 10:54

One week in and 3% of the way. Thank you all - you are fantastic!

23/08/12 09:16

My Teams

My company

My charity

Tree of Hope

Tree of Hope

Charity Registration No. 1149254 In Scotland SC042611

Tree of Hope offers hope to the families of sick children in the UK who need specialist medical surgery, treatment, therapy and equipment in order to free them from suffering, giving a better quality to their young lives. England & Wales 1043092 Scotland SCO4261 http://www.treeofhope.org.uk

Donations 274

Inmem.png

Hope this little bit helps you to get your Op! Good luck.

Donation by EmJam on 13/02/13

£20.00

+ £5.00 Gift Aid

Beautiful, clever Skye! A little raised from the Christmas Fayre and Burlesque fundraiser, towards your bright and exciting future Much love xx

Donation by Shelley Taylor on 02/01/13

£100.00

Donation by Anonymous on 22/11/12

£10.00

smiley.png

Donation by Anonymous on 20/11/12

£2.50

+ £0.63 Gift Aid

text donation

Donation by Anonymous on 20/11/12

£5.00

heart.png

Donation by a local friend on 20/11/12

£50.00

text donation

Donation by Anonymous on 15/11/12

£2.00

Donation by Valerie Mudway on 14/11/12

£30.00

smileys.png

Here is the money we raised from our sponsored bike ride from Christ Church to Gloucester Cathedral.

Donation by Amanda Thiselton on 13/11/12

£87.00

Donation by Anonymous on 13/11/12

£2.00

Inmem.png

Let's hope you reach your target soon so that Skye can have her operation.

Donation by Virginia Mullan on 12/11/12

£50.00

+ £12.50 Gift Aid

text donation

Donation by Anonymous on 12/11/12

£10.00

Inmem.png

Donation by Sarah McKenzie on 11/11/12

£10.00

+ £2.50 Gift Aid

smiley.png

Donation by jenniwren on 08/11/12

£10.00

+ £2.50 Gift Aid

Donation by Stuart Bell on 05/11/12

£10.00

+ £2.50 Gift Aid

cupcake.png

The donation is on behalf of Bills Mum and Dad

Donation by Valerie Parnell on 04/11/12

£20.00

+ £5.00 Gift Aid

mobile-phone.png

Good luck with your fundraising - i\'ve only \'met\' Skye through facebook but she\'s ace! :-)

Donation by Sarah Bell on 02/11/12

£10.00

+ £2.50 Gift Aid

text donation

Donation by Anonymous on 02/11/12

£5.00

Trophy.png

Having a 3 year old I understand how precious they are & how you want to do everything you can. I hope you reach your target. Good Luck X

Donation by Katherine Scott on 02/11/12

£5.00

text donation

Donation by Anonymous on 02/11/12

£5.00

smiley.png

Donation by Anonymous on 30/10/12

£10.00

+ £2.50 Gift Aid

Donation by Brian Slee on 29/10/12

£25.00

+ £6.25 Gift Aid

windmill2.png

Good luck with all your fundraising and hope you will soon get to your target.

Donation by Carol Russell on 26/10/12

£10.00

+ £2.50 Gift Aid

Donation by Barbara Cullingworth on 25/10/12

£55.00

+ £13.75 Gift Aid

heart.png

Hi, Donna invited me to the belly-dancing evening but I was busy. Thought I'd like to donateto your cause XX.

Donation by Lesley on 24/10/12

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations£7,956.02
  • Offline donations£6,844.15
  • Text donations£326.00
  • Total raised£15,126.17
  • Gift Aid£1,254.38

* Charities pay a small fee for our service. Find out how much it is and what we do for it.