My story

Thanks for taking the time to visit my JustGiving page.

Niamhs condition and her battle with Neuroblastoma has had a siesmic effect on the whole community in a way which we have not experienced before. We would dearly like to do something to help Niamh recieve the treatment that she so desperately needs.

An extract taken from www.niamhsnextstep.com

Niamh was diagnosed with a rare and aggressive childhood cancer called Neuroblastoma (Stage 4 High Risk) just before Christmas 2010 when she was just 3 years old.

Since then Niamh has spent countless days and nights in hospital for treatment that has included Rapid Cojec Chemotherapy, a 4 hour operation to remove the tumor which was located on her adrenal gland, high dose chemotherapy and stem cell transplant and 14 treatments of Radiotherapy. On top of this there have been lots of blood and platelet transfusions, lots and lots of scans and general hospital visits and loads of time away from home.

Things were going really well with Niamhs treatment and she started big school in September. Life was getting back to normal, well sort of. In November 2011 plans were put into place to start the final antibody treatment called Anti GD2. This gives the biggest hope of keeping the Neuroblastoma away for good. After nearly 1 year of treatment there was light at the end of the tunnel for Niamhs family.The hospital carried out all of the usual pre- treatment MIBG & MRI scans and the bone marrow biopsies. Two days before going into hospital for the Anti GD2 Niamh's parents got a phone call from the hospital that broke their hearts all over again. The cancer had come back...

There is no UK relapse protocol and now had to face the harsh realisation that any treatment in the UK does not aim to cure Niamh.

In the US this is not the case and there are many relapse protocols. This is where we need to take our amazing little girl to give her the best chance of survival.
The treament Niamh needs is at The Children's Hospital of Philidelphia and costs around £450 000.

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So please dig deep and donate now.

My gallery 1

My updates 1

We have finally collected the sponsorship money pledged in cash and added it to the fund. With Gift Aid we raised £940 which is a great effort and we thank everyone for contributing. Whilst it is too late to help Niamh I am sure it will help someone else.

22/11/12 00:15

My Teams

My company

My charity

Neuroblastoma Children's Cancer Alliance

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.

Donations 18

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Sponsorship money collected in cash. Thank you so much.

Donation by Richard Reynolds on 22/11/12

£346.00

+ £86.50 Gift Aid

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Well done from Maria,Steve,Elena and Sam :-)

Donation by stephen lawrence on 13/06/12

£10.00

+ £2.50 Gift Aid

Donation by Karen Dean on 11/06/12

£20.00

+ £5.00 Gift Aid

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well done Rich & Nicola. Good effort.

Donation by mark jones on 10/06/12

£20.00

+ £5.00 Gift Aid

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Have a good run and well done!

Donation by John Reynolds on 10/06/12

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Good luck to you both!

Donation by Joanne Radcliffe on 09/06/12

£10.00

+ £2.50 Gift Aid

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Good Luck Uncle Rich & Auntie Nic!! You can do it! Lots of love, Daniel and Jacob xxx

Donation by HELEN REYNOLDS on 09/06/12

£26.00

+ £6.50 Gift Aid

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Good Luck

Donation by John Austin on 06/06/12

£20.00

+ £5.00 Gift Aid

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Good luck with the run, I may bring the kids out to the lakes to see how you get on!

Donation by Mark Sanderson on 06/06/12

£20.00

+ £5.00 Gift Aid

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Dear Rich & Nic, Do well, have fun and run fast.

Donation by jeremy goode on 06/06/12

£20.00

+ £5.00 Gift Aid

Much love to you both, and good luck for the day xx

Donation by Helen Sharpe on 01/06/12

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Guys, Good luck on the half marathon. JDDA

Donation by Jason Ingle on 27/05/12

£50.00

+ £12.50 Gift Aid

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Good luck to you both - hope the training is going well. Lots of love Lynne & Foz xxx

Donation by Lynne Forrester on 18/05/12

£50.00

+ £12.50 Gift Aid

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Good luck to you both. Well done. Love Tony and Ali Campbell

Donation by Allison Campbell on 11/05/12

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 03/05/12

£25.00

+ £6.25 Gift Aid

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Good luck and best wishes to you both. You are doing an amazing thing Lots of love Claire Poole and family xx

Donation by Claire Poole on 03/05/12

£40.00

+ £10.00 Gift Aid

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What an inspirational story and as a mum myself find the efforts and support for this little girl amazing!!! Good luck and well done to you both x

Donation by Elizabeth Stockham on 03/05/12

£25.00

+ £6.25 Gift Aid

Wishing everyone trying to help this valiant and completely gorgeous little girl every success in reaching their goal of a cure x Run Forest, run! X

Donation by Matty, Lianne and the Beddenettes XXxxxx on 03/05/12

£25.00

+ £6.25 Gift Aid

Donation summary

  • * Online donations£752.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£752.00
  • Gift Aid£188.00

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