zoe Brunswick
The Brunswick's
Fundraising for Foundation for Prader-Willi Research UK
Story
In August 2014, our friends Catherine and Jonathan welcomed their second baby boy into the world. William was diagnosed with Prader Willi Syndrome at birth. He spent his first 3 weeks in the Special Care Baby Unit at Wrexham Maelor Hospital and was fed through a Nasal Gastric tube in until he was 16 weeks.
Suffering from low muscle tone, Wills is a true fighter and only started to walk earlier this year. Not to let PWS get the better of him, he has just this month started nursery school #willpower!!
He is such a happy little boy who always has a smile on his face and loves being cuddled by his big brother James.
Prader-Willi syndrome (often called PWS) is a complex medical condition that affects both males and females throughout their lives. People with PWS may need extra support with health and development and in the areas of education and work.
Seeing the determination on Wills face to not let this define him has made us want to push ourselves physically to raise much needed funds for more research into Prader-Willi syndrome.
On Sunday 10th September, my husband Richard and I will be taking on the Tough Mudder Half at Cholmondely Castle. Not fully knowing what is going to face us on the day, this is going to take strength, determination and team work to tackle this enduring physical challenge. If a little boy like William can take his challenges in his stride then so can we #willpower!!!
Please sponsor us to support much needed research into this syndrome, helping us to contribute to an even brighter future for William and his family and all the other people who are affected by PWS.
Thanks for taking the time to visit our JustGiving page. Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving they never sell them on or send unwanted emails. Once you donate, they will send your money directly to the charity. So its the most efficient way to donate, saving time and cutting costs for the charity.
Suffering from low muscle tone, Wills is a true fighter and only started to walk earlier this year. Not to let PWS get the better of him, he has just this month started nursery school #willpower!!
He is such a happy little boy who always has a smile on his face and loves being cuddled by his big brother James.
Prader-Willi syndrome (often called PWS) is a complex medical condition that affects both males and females throughout their lives. People with PWS may need extra support with health and development and in the areas of education and work.
Seeing the determination on Wills face to not let this define him has made us want to push ourselves physically to raise much needed funds for more research into Prader-Willi syndrome.
On Sunday 10th September, my husband Richard and I will be taking on the Tough Mudder Half at Cholmondely Castle. Not fully knowing what is going to face us on the day, this is going to take strength, determination and team work to tackle this enduring physical challenge. If a little boy like William can take his challenges in his stride then so can we #willpower!!!
Please sponsor us to support much needed research into this syndrome, helping us to contribute to an even brighter future for William and his family and all the other people who are affected by PWS.
Thanks for taking the time to visit our JustGiving page. Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving they never sell them on or send unwanted emails. Once you donate, they will send your money directly to the charity. So its the most efficient way to donate, saving time and cutting costs for the charity.