My story

The little man in the picture is my nephew George. He's one year old and sadly, it doesn't look like he's ever going to be able to walk.

This seems pretty unfair - especially if you've met George - and I'm absolutely gutted for him. It's because he's one of only 100 people a year who are diagnosed with Spinal Muscular Atrophy, a genetic condition that stops signals from his brain reaching his muscles properly. He can sit up and use his arms, and we really hope that's not going to change.

The Jennifer Trust is the only UK charity helping those affected by this condition. They support families and promote research. www.jtsma.org.uk

And don't think that I'm cheating by picking a cycling event! The Fred Whitton is one of the hardest road rides in the UK and it's one of the only things I've done on a bike that I'm nervous about. That's partly because it's a road ride and I'm going to be bored out of my mind, but mainly because it goes over Hardknott Pass (1 in 3!) after 95 hilly miles...

Please give George your money. If you don't, his twin brother Harry is getting pretty enormous (and loud) and will come round and howl at you.

 

My charity

Jennifer Trust for Spinal Muscular Atrophy

Jennifer Trust for Spinal Muscular Atrophy

Charity Registration No. 1106815

The Jennifer Trust for Spinal Muscular Atrophy works with children and adults who have spinal muscular atrophy, and their families. The charity offers a range of support services to help families cope with both the emotional and practical issues that the diagnosis brings, whilst funding research to find answers for tomorrow.

Donations 97

smileys.png

Very best wishes, Tom, and love to George and family. Ann Taylor.

Donation by Patricia Ann Taylor on 12/04/12

£20.00

+ £5.00 Gift Aid

Inmem.png

I hope that this will help George (and his parents) in some way.

Donation by jill thomson on 11/04/12

£20.00

+ £5.00 Gift Aid

smileys.png

Best of luck Tom!

Donation by Edward Hartley on 06/04/12

£20.00

+ £5.00 Gift Aid

Donation by Jean Grimes on 04/04/12

£10.00

+ £2.50 Gift Aid

smileys.png

Good luck with the fundraising!

Donation by Samara Nicholls (Former SFC) on 02/04/12

£2.50

ThumbsUp.png

Good Luck with the training and the race itself.

Donation by Lisa (SFC) on 02/04/12

£10.00

+ £2.50 Gift Aid

smiley.png

All the very best - makes me tired just thinking about it!

Donation by Nicole Ashbrook (St Francis' College) on 30/03/12

£5.00

+ £1.25 Gift Aid

Superman.png

Go super Uncle Tom!!

Donation by Ed, Anna and Charlotte Allaway on 29/03/12

Superman.png

Good luck. I am very impressed with the amount of money you have raised.

Donation by Sharon at SFC on 29/03/12

£20.00

+ £5.00 Gift Aid

smiley.png

Good luck

Donation by Anonymous on 22/03/12

£40.00

+ £10.00 Gift Aid

thumbsUp.png

Best Wishes

Donation by Joan Veazey on 19/03/12

£10.00

+ £2.50 Gift Aid

Superman.png

Nice one Tom, good to see you're staying in touch with your good friend PAIN

Donation by Nick Selmes on 02/03/12

£20.00

+ £5.00 Gift Aid

cupcake.png

It's a shame I'm busy that weekend, otherwise we'd have joined you! ;-) Best of luck cupcake...

Donation by Pete & Lana on 02/03/12

£50.00

+ £12.50 Gift Aid

thumbsUp.png

Donation by Chris Johnston on 02/03/12

£100.00

+ £25.00 Gift Aid

thumbsUp.png

best of luck

Donation by steve clark on 02/03/12

£100.00

+ £25.00 Gift Aid

heart.png

Best of luck, especially Hard Knott pass!

Donation by Olive Fenton on 23/02/12

£100.00

+ £25.00 Gift Aid

smiley.png

Donation by Michael M on 20/02/12

present.png

Good Luck Mate

Donation by Andrew Johnson on 20/02/12

£25.00

+ £6.25 Gift Aid

Trumpet.png

Donation by Georges friend Sammy on 19/02/12

smileys.png

As already explained I will double the contribution if you fully embrace the road-riding mentality!

Donation by Hazel Woodland on 16/02/12

£50.00

+ £12.50 Gift Aid

Donation by Christopher Fargnoli on 16/02/12

£100.00

smileys.png

Donation by Tamara Bright on 16/02/12

£50.00

Superman.png

Donation by Victor Mankovsky on 16/02/12

£100.00

thumbsUp.png

Donation by Christopher Matthaei on 16/02/12

£100.00

Trumpet.png

Donation by frank miceli on 16/02/12

£500.00

Donation summary

  • * Online donations£3,874.50
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£3,874.50
  • Gift Aid£575.50

* Charities pay a small fee for our service. Find out how much it is and what we do for it.