**** SANTA RUN 2010 CANCELLED *****
It is the night before the Santa run and we have just heard from the organisers that due to the bad weather they have had to cancel the Santa Run. It seems strange that it ahs been cancelled due to snow. Unhappy faces in Hartley Household tonight :(
If you would like a refund of your donation then please do let us know and we will arrange this. If not, then all your kind donations will still go into medical research into this awful condition.
Thank you D+A+J+N+D+L
Thanks for taking the time to visit our JustGiving page.
Each year we look to take on a new challenge as a family and this year will be really extra special.
Because the boys have all recovered well after their bone marrow transplants we will be for the first time able to do it TOGETHER!
And we are taking on a 5K Santa Run in Greenwich Park in London on the 5th December. Now because of Joshua's Scleroderma and Luke still getting fitter we will be using a suitably decorated wheelchair - and we'll probably walk most of it....
All the money raised will go into the charity we established to support other XLP affected families and fund medical research into this rare but life taking condition. So please be generous!
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
