My story

Hello,

I’m Zavier Shanks, though everyone seems to call me “Mr Sausage” for some reason.

I was born in Worcester on 1st October 2010. My mummy is Suzi and my daddy is Tom. I have 2 big sisters and a big brother. He’s my big mate and he looks after me just like big brothers do.
I get lots and lots of cuddles and kisses from everyone (between you and me I think I probably get too many – everyone makes such a fuss and they could do with just giving me a break every now and then)!
I enjoy listening to the general chaos around the house and I like watching football matches too. I spend the rest of my time trying to avoid hospitals and I try to squeeze as much fun as I can out of each day. That said, I enjoy relaxing activities like sleeping, feeding and bathing too. Because I have something called an NG tube I can actually have my dinner and sleep at the same time. I bet you wish you could do that don’t you?

Mine is a fairly uncomplicated life, and I am no poorer because of that let me assure you. I have something (and brace yourself, as this is a bit of a mouthful) called a severe congenital sensory and motor peripheral neuropathy. It causes me no real pain though, and like I say, I’m pretty relaxed and matter of fact about things generally.

12 friends of mine are planning to climb Britain’s 3 highest peaks in 3 consecutive days in aid of the Orchard Nurses. They are a small team of nurses who ensure that I am able to be looked after at home rather than in hospital or in a hospice. They are an invaluable support to me and my family, and can be here within minutes of us contacting them every day.

They all arrive with a smile on their faces and nothing is too much trouble, from replacing feeding tubes, ordering medicines, equipment, contacting the GP, organizing appointments with other professionals and generally ensuring that we as a family are looked after in every way possible. Rosie, our Family Support Worker has built a wonderful relationship with Xara, Jasper and Scarlett and is helping them to deal with the enormity of the situation that we find ourselves in and helps them deal with their feelings day to day and looking to the future. Her role covers the whole county and other families but she always makes time to visit us and to ensure that we are all ok, even the Henry the dog!

My friends want to do this in order to raise money for these wonderful people ensuring that I continue to get the best care possible at home for my lifetime.

I would be so grateful if you would consider sponsoring them in their endeavours and raising money for this great cause which is so very personal to us.

Good luck.

Hope to see you soon.

Lots of love,

Zavier

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My Teams

My company

My charity

WORCESTERSHIRE HEALTH & CARE NHS TRUST

WORCESTERSHIRE HEALTH & CARE NHS TRUST

Charity Registration No. 1060335

ANY CHARITABLE PURPOSE WITHIN THE NHS

Donations 211

Good luck Tom & Paul, hope the aches and pains aren't too bad!

Donation by Andrew Peach on 08/09/11

£30.00

+ £7.50 Gift Aid

Good luck Dave and don't forget your cagoule.

Donation by Tony Howse on 08/09/11

£10.00

+ £2.50 Gift Aid

Donation by David Boyce on 08/09/11

£20.00

+ £5.00 Gift Aid

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Good luck :) hope all goes well Mr Legend and hope the weather improves for you xx

Donation by Sharon Crocker (mrsbillcompton) on 08/09/11

£5.00

+ £1.25 Gift Aid

Good Luck everyone!!

Donation by James Platt on 08/09/11

£20.00

+ £5.00 Gift Aid

Best of luck to all envolved.

Donation by andy ball on 08/09/11

£10.00

+ £2.50 Gift Aid

Donation by Steve Jennings on 07/09/11

£30.00

+ £7.50 Gift Aid

Donation by Julia Frank on 07/09/11

£10.00

Well done guys I hope you reach your target for such a worthy cause, make Zavier proud xx

Donation by Amanda Webb on 07/09/11

£10.00

+ £2.50 Gift Aid

Aimee and Stefani would like to donate their pocket money to the lovely orchard team that helped their best friend, they do an amazing job xx

Donation by Amanda Webb on 07/09/11

£10.00

+ £2.50 Gift Aid

We will miss you while you're away but we are really proud of you Daddy! Love from Grace and Isaac xxxxxxxxxx P.S. Send us lots of photos!

Donation by Grace and Isaac Shepherd on 07/09/11

£30.00

+ £7.50 Gift Aid

Donation by Louise Noble on 07/09/11

£15.00

+ £3.75 Gift Aid

My hairdresser gave me a full refund this evening.......hmmm, I didn't think is was that bad a job! Bless you Nicola x

Donation by Andrew Biggs on 07/09/11

£12.50

+ £3.13 Gift Aid

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Thank you Orchard Nurses are so special & look after us & Zavier so well. Hope Dad doesn't fall off the top of peaks! Don't break a leg Dad!

Donation by Xara, Jasper & Scarlett x on 07/09/11

£15.00

+ £3.75 Gift Aid

From Tony Durrell. Good luck men!

Donation by Andrew Biggs on 07/09/11

£5.00

+ £1.25 Gift Aid

From Deltalight + Martyn Gravitt and Paul Prescott Good Luck to me .....and everyone else!

Donation by Andy Barnett on 07/09/11

£130.00

What brilliant ambition you guys have! Good luck reaching that fundraising target and of course for the big event. Matt

Donation by Matt Wardle on 07/09/11

£50.00

+ £12.50 Gift Aid

Good Luck Guys.

Donation by Andrew Thomson on 07/09/11

Good Luck to all from LSE Lighting

Donation by James Mansfield on 07/09/11

£50.00

GOOD LUCK PAUL AND TOM. I HOPE THE WEATHER IS KIND TO YOU.

Donation by ian campbell on 07/09/11

£10.00

+ £2.50 Gift Aid

Good luck Andy and friends :)

Donation by Nicola Mckenzie on 07/09/11

£50.00

+ £12.50 Gift Aid

WOOOOOOOOO HOOOOOOOO GOOD LUCK BRO AND ALL MEN! You can do it!!!!!!!! GUTTED I am not on the team! Slam it for Zavier xxx

Donation by Liz Shanks on 07/09/11

£30.00

+ £7.50 Gift Aid

good luck shooey barnett chazman and mike love holly amy and george GOOD LUCK DADDY LOVE AMY AND GEORGE

Donation by holly loader on 07/09/11

£20.00

+ £5.00 Gift Aid

Good luck chaps on thursday - lets hope the weather holds for you all. From all at Zebra Architects

Donation by Chris Partington on 07/09/11

£50.00

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Best of luck to you all!

Donation by Jackie Ball on 07/09/11

£5.00

+ £1.25 Gift Aid

Donation summary

  • * Online donations$8,011.16
  • Offline donations$0.00
  • Text donations$0.00
  • Total raised$8,011.16
  • Gift Aid$1,410.94

* Charities pay a small fee for our service. Find out how much it is and what we do for it.