My story

Hello,

I’m Zavier Shanks, though everyone seems to call me “Mr Sausage” for some reason.

I was born in Worcester on 1st October 2010. My mummy is Suzi and my daddy is Tom. I have 2 big sisters and a big brother. He’s my big mate and he looks after me just like big brothers do.
I get lots and lots of cuddles and kisses from everyone (between you and me I think I probably get too many – everyone makes such a fuss and they could do with just giving me a break every now and then)!
I enjoy listening to the general chaos around the house and I like watching football matches too. I spend the rest of my time trying to avoid hospitals and I try to squeeze as much fun as I can out of each day. That said, I enjoy relaxing activities like sleeping, feeding and bathing too. Because I have something called an NG tube I can actually have my dinner and sleep at the same time. I bet you wish you could do that don’t you?

Mine is a fairly uncomplicated life, and I am no poorer because of that let me assure you. I have something (and brace yourself, as this is a bit of a mouthful) called a severe congenital sensory and motor peripheral neuropathy. It causes me no real pain though, and like I say, I’m pretty relaxed and matter of fact about things generally.

12 friends of mine are planning to climb Britain’s 3 highest peaks in 3 consecutive days in aid of the Orchard Nurses. They are a small team of nurses who ensure that I am able to be looked after at home rather than in hospital or in a hospice. They are an invaluable support to me and my family, and can be here within minutes of us contacting them every day.

They all arrive with a smile on their faces and nothing is too much trouble, from replacing feeding tubes, ordering medicines, equipment, contacting the GP, organizing appointments with other professionals and generally ensuring that we as a family are looked after in every way possible. Rosie, our Family Support Worker has built a wonderful relationship with Xara, Jasper and Scarlett and is helping them to deal with the enormity of the situation that we find ourselves in and helps them deal with their feelings day to day and looking to the future. Her role covers the whole county and other families but she always makes time to visit us and to ensure that we are all ok, even the Henry the dog!

My friends want to do this in order to raise money for these wonderful people ensuring that I continue to get the best care possible at home for my lifetime.

I would be so grateful if you would consider sponsoring them in their endeavours and raising money for this great cause which is so very personal to us.

Good luck.

Hope to see you soon.

Lots of love,

Zavier

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My Teams

My company

My charity

WORCESTERSHIRE HEALTH & CARE NHS TRUST

WORCESTERSHIRE HEALTH & CARE NHS TRUST

Charity Registration No. 1060335

ANY CHARITABLE PURPOSE WITHIN THE NHS

Donations 211

Good luck

Donation by Polly Stevenson on 06/09/11

£15.00

+ £3.75 Gift Aid

Good luck to Tom and Andy!

Donation by Karen Bowkett on 06/09/11

Good luck Wayne in Gods own country.

Donation by roger jones on 06/09/11

£10.00

+ £2.50 Gift Aid

Andy,what your all doing is sooooo good and meaningful. Good luck take care and well done in anticipation. Hurrrayyyy u did it :0)

Donation by Trude Whisker on 06/09/11

£20.00

+ £5.00 Gift Aid

All the best good luck I hope the trek goes well and that lots of money is raised for such a good cause.

Donation by Helen Staight on 06/09/11

£20.00

Good luck with those mountains Andy. Make sure you wear your waterproofs this time!

Donation by Dawn Jones on 06/09/11

£10.00

+ £2.50 Gift Aid

See you Saturday night. Good luck for Friday & Saturday.

Donation by Bob Shoosmith on 06/09/11

£20.00

+ £5.00 Gift Aid

Go for it Andy, keep thinking of roses and all beautiful things. Good Luck.

Donation by Susan Richards on 06/09/11

£10.00

+ £2.50 Gift Aid

Donation by Graham Cheung on 06/09/11

£50.00

+ £12.50 Gift Aid

Zavier, you are a beauty.. as is your lovely Aunty Liz. Please give her a cheeky birthday grin from me. With lots of love to you and your family xx

Donation by Christine Biggs on 06/09/11

£15.00

+ £3.75 Gift Aid

Fantastic effort for a special boy and his wonderful support team

Donation by Gill MacDonald on 06/09/11

Good luck Biggsy. Are you elevating trolley and trailer?

Donation by Ian Cunliffe on 06/09/11

£20.00

+ £5.00 Gift Aid

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Good Luck guys

Donation by Christian O'Brien on 06/09/11

£10.00

No throwing up this time Mr Loader! Hope it doesn't rain too much.

Donation by Clive Jones on 06/09/11

£20.00

+ £5.00 Gift Aid

Please don't let Andy get lost boys - our garden needs him. Best Wishes to you all for a successful mission. Kay & Geoff Edwards

Donation by Geoffrey Edwards on 06/09/11

£25.00

+ £6.25 Gift Aid

Best of luck Andy and all your mates. Have a fab time and hope you reach your fundraising target.

Donation by Irene Evison on 06/09/11

£10.00

+ £2.50 Gift Aid

Take it one step at a time. Good luck, Thomas your gonna need it. Enjoy.

Donation by joe shanks on 06/09/11

£30.00

+ £7.50 Gift Aid

shoe.png

Climb those peaks boys !! Climb till you can't climb anymore, then keep climbing ...

Donation by Autumn Morrison on 06/09/11

£20.00

+ £5.00 Gift Aid

Good luck to all - especially Bob who at his age may require Paul to climb behind him & give him the occasional push (only upwards of course)lol.

Donation by Keeley & Richard Todd on 06/09/11

£50.00

+ £12.50 Gift Aid

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Tuck, if ya have any trowble from any wise-guys who down't pay up when dey outa...I know some guys...if ya get my meenin. Don't let me down big boy!

Donation by Nice Guy Tony on 05/09/11

£20.00

+ £5.00 Gift Aid

Good Luck. Best wishes from Gareth Mandy Holly and Megan

Donation by Gareth Cooper on 05/09/11

£25.00

+ £6.25 Gift Aid

Respect with every step

Donation by Gordon Daffen on 05/09/11

£10.00

+ £2.50 Gift Aid

Good Luck Mr Chapman, and the rest of you good people.

Donation by Karen Perry on 05/09/11

£10.00

+ £2.50 Gift Aid

Good luck all of you! Well done Zav, great idea! Lots of love, Maggie x

Donation by Margaret Shanks on 05/09/11

£20.00

+ £5.00 Gift Aid

windmill.png

Good luck!!!

Donation by Natalia Garcia on 05/09/11

£15.00

Donation summary

  • * Online donations£5,279.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£5,279.00
  • Gift Aid£929.75

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