Registered charity number 1036419
On JustGiving since Oct 2003
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Together, let's end the ignorance, injustice and neglect of M.E., once and for all - www.actionforme.org./time-for-action
We will campaign relentlessly to expose the neglect of M.E. and the institutional discrimination against those who have it, until Government commits to putting this right.
We will drive the agenda on scientific research by investing in our own pilot studies to open up understanding of the biology of M.E.
We will continue to compensate for Government failings by providing support to people with M.E. through our Online M.E. Centre and Telephone Support Lines, and will launch new services to help GPs, employers and teachers understand the illness better.
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Thank you.
"I became ill in 1999 following a bout of labyrinthitis and was diagnosed with M.E. in 2007.
"I was a Crown Court manager. I eventually lost my job due to ill health and had a lengthy battle with my employer who dismissed me after 26 years service. I was made to leave one week before my job would have been protected under disability discrimination legislation.
"I was refused early retirement because my specialist doctor on the pension board said I hadn’t explored all options the NHS had to offer. But the treatment that was offered was at a pain clinic – not an M.E. clinic – 70 miles away.
"At my worst, I was unable to speak, wash, eat, drive, shower, walk or watch TV. I did not know who or where I was. My doctor says I will never work again.
"More specialist treatments and better research are desperately needed."
Moya's story