Mark Moscrop is fundraising for DebRA

BABY BRIDA ELIZABETH HEARTFORD

'The Little Princess'

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Raising money for

DebRA

Charity Registration No. 1084958

EB - Epidermolysis Bullosa - is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. People with severe EB are likely to contract a fatal skin cancer. DebRA provides specialist EB nursing, funds extensive medical research and provides counselling, welfare, respite and advocacy.

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Mark Moscrop

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14/08/2007

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Raised: 125%

Target: £12,000.00
Raised so far: £15,055.00

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My story

Cpl ‘Damo’ Heartford is a RAF Police Dog Handler based in Wiltshire, he and his and wife; Stacey, were blessed on the 25th of January 2007 with the arrival of baby ‘Brida’, this beautiful child weighed in at a delicate 6lb 9oz.

Immediately Doctors diagnosed Brida as having the rare genetic condition Epidermolysis Bullosa (EB), in which the skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds. This condition is likely to affect 1 in 17,000 live births and it is estimated that there are currently 5,000 people with the condition in the UK. Because EB is an inherited condition (it cannot be caught), which is passed on genetically from parents to children, first time parents often do not know that they are carriers and will have no prior warning that the child will be affected, until birth.

There are varying degrees of EB the more severe types have an exceptionally high risk of developing skin cancers, shortening their lives by approximately 30-40 years. In its most severe form, the condition is fatal in infancy.

Brida has the most sever type and the Doctors have indicated that the prognosis for this beautiful and delicate child is extremely poor.

Assistance and professional care for sufferers and family is provided by the Dystrophic Epidermolysis Bullosa Research Association ‘DebRA’ this worthy charity will give Brida and her parents some measure of comfort during her remaining time.

Please give all you can, if you are affiliated with the Armed Forces then use this as the ‘family’ network which I have always imagined it to be. We are looking after one of our own.

Our thoughts and prayers are with Damo, Stacey and Baby Brida. .

	From a mother stationed at RAF Lyneham. Best wishes to you all Donation by anonymous 20/04/07	£20.00 + £5.64 Gift Aid
	Stacey, Damo & Brida thinking of you all much love xx Donation by Andy & Sue Phillips 19/04/07	£80.00 + £22.56 Gift Aid
	Our prayers are with you Donation by anonymous 18/04/07	£20.00 + £5.64 Gift Aid
	Donation by Rob & Ang 17/04/07	£150.00 + £42.31 Gift Aid
	Good Luck, I'll be thinking of you and your daughter! Donation by fionadonocik 16/04/07	£10.00 + £2.82 Gift Aid
	Donation by Bull and Dale Families 15/04/07	£40.00 + £11.28 Gift Aid
	Supporting you in the Marathon Des Sables. Well done! Donation by Looe Community 13/04/07	£110.00
	Thinking of you all (Friends of Jan and Phil Bull) Donation by Danylevych Family 11/04/07	£20.00
	Not much I know, but every little helps. Donation by Judith (Tronic Duneraider) 05/04/07	£10.00 + £2.82 Gift Aid
	good luck Donation by William.A. Suthers 03/04/07	£40.00 + £11.28 Gift Aid
	Donation by Anonymous 30/03/07	£10.00
	our thoughts, love and prayers are with you all. Anne, Stan, Stefan and Dominic Donation by Anne 29/03/07	£50.00
	We can only imagine what you are going through, our hearts go out to you all...good luck Mark! Donation by Mick Anstice 29/03/07	£20.00 + £5.64 Gift Aid
	Donation by anonymous 27/03/07	£10.00 + £2.82 Gift Aid
	Good Luck to the Sahara Seven and thank you for supporting Damo, Stacey & my Great Grandaughter Donation by Great Grandma Holland 23/03/07	£50.00
	Good luck to you all. The best cause in the world. Donation by NickS 23/03/07	£50.00 + £14.10 Gift Aid
	Best wishes from a friend of Dawn McMonagle in Cyprus. Donation by Tim Fauchon 22/03/07	£20.00 + £5.64 Gift Aid
	Donation by Dominic Martin 21/03/07	£100.00 + £28.21 Gift Aid
	Damo and the rest of the seven, Running for baby 'B' - my failed diet money- Big hugs 4 all of you Donation by mother-in-law 20/03/07	£32.00 + £9.03 Gift Aid
	Sending you our love xxx Donation by Les & Gladys (Gem & Katies grandparents) 20/03/07	£10.00 + £2.82 Gift Aid
	We're thinking of 3 very special people and want to send all of our love xxxxx Donation by Jan & Phil Bull 20/03/07	£20.00 + £5.64 Gift Aid
	Donation by Claire Hughes 20/03/07	£50.00 + £14.10 Gift Aid
	Wishing you and baby Brida love and peace from Lena and Alfies mate Caf in New Zealand Donation by Caf Lyndon Levi Troy and Harvey 20/03/07	£20.00
	god bless, be strong, our thoughts r with u Donation by Karen & Arron Nelson 19/03/07	£5.00 + £1.41 Gift Aid
	Thinking of you all. Donation by Faye and Con Truong (nee Tugby) 18/03/07	£50.00 + £14.10 Gift Aid
	Damo and Mrs Damo my thoughts are with you. Donation by Neil Baldwin 15/03/07	£20.00 + £5.64 Gift Aid
	Donation by Bruce Paterson 13/03/07	£10.00 + £2.82 Gift Aid
	Donation by Ob 13/03/07	£10.00 + £2.82 Gift Aid
	Donation by Jean Paterson 13/03/07	£10.00 + £2.82 Gift Aid
	Donation by Michael King 13/03/07	£10.00 + £2.82 Gift Aid

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* Total raised online:	£8,555.00
Offline donations:	£6,500.00
Gift Aid plus supplement:	£1,853.72

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.