Mark Moscrop is fundraising for DebRA

BABY BRIDA ELIZABETH HEARTFORD

'The Little Princess'

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Raising money for

DebRA

Charity Registration No. 1084958

EB - Epidermolysis Bullosa - is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. People with severe EB are likely to contract a fatal skin cancer. DebRA provides specialist EB nursing, funds extensive medical research and provides counselling, welfare, respite and advocacy.

Page owner

Mark Moscrop

Page closes

14/08/2007

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Raised: 125%

Target: £12,000.00
Raised so far: £15,055.00

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My story

Cpl ‘Damo’ Heartford is a RAF Police Dog Handler based in Wiltshire, he and his and wife; Stacey, were blessed on the 25th of January 2007 with the arrival of baby ‘Brida’, this beautiful child weighed in at a delicate 6lb 9oz.

Immediately Doctors diagnosed Brida as having the rare genetic condition Epidermolysis Bullosa (EB), in which the skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds. This condition is likely to affect 1 in 17,000 live births and it is estimated that there are currently 5,000 people with the condition in the UK. Because EB is an inherited condition (it cannot be caught), which is passed on genetically from parents to children, first time parents often do not know that they are carriers and will have no prior warning that the child will be affected, until birth.

There are varying degrees of EB the more severe types have an exceptionally high risk of developing skin cancers, shortening their lives by approximately 30-40 years. In its most severe form, the condition is fatal in infancy.

Brida has the most sever type and the Doctors have indicated that the prognosis for this beautiful and delicate child is extremely poor.

Assistance and professional care for sufferers and family is provided by the Dystrophic Epidermolysis Bullosa Research Association ‘DebRA’ this worthy charity will give Brida and her parents some measure of comfort during her remaining time.

Please give all you can, if you are affiliated with the Armed Forces then use this as the ‘family’ network which I have always imagined it to be. We are looking after one of our own.

Our thoughts and prayers are with Damo, Stacey and Baby Brida. .

	Thinking of you all and we send our best wishes to you and your beautiful daughter, Andy Sue and Lee Donation by Pricey 22/02/07	£50.00 + £14.10 Gift Aid
	Donation by michael helen and elliott smith.[electrician] 21/02/07	£20.00 + £5.64 Gift Aid
	Heard from Dawn Mc. Our thoughts are with you & your family. Donation by Sara & Tony Jones 21/02/07	£20.00 + £5.64 Gift Aid
	My thoughts are with you in such difficult times. Donation by Jonathan Spring-Rice 21/02/07	£30.00 + £8.46 Gift Aid
	Donation by Phil & Dawn McLeish 21/02/07	£20.00 + £5.64 Gift Aid
	Donation by Anthony Wilson 21/02/07	£20.00 + £5.64 Gift Aid
	Thinking of you all xx Donation by Steph Carr 21/02/07	£10.00 + £2.82 Gift Aid
	from Gramps, and from Granny too Donation by Gramps 21/02/07	£100.00 + £28.21 Gift Aid
	friends of the Pascoes, sending you best wishes. Donation by Paula,Alice and Jenny 21/02/07	£20.00 + £5.64 Gift Aid
	All the best Donation by Flo 21/02/07	£20.00 + £5.64 Gift Aid
	Donation by Vicki Vicolson 21/02/07	£10.00 + £2.82 Gift Aid
	Donation by Anonymous 21/02/07	£10.00 + £2.82 Gift Aid
	Our thoughts are with you Donation by John Moran 21/02/07	£20.00 + £5.64 Gift Aid
	My heartfelt best wishes to you all. Friend of Katie Bulls Donation by liz binder 21/02/07	£10.00 + £2.82 Gift Aid
	our thoughts are with you Donation by Mike and Denise Gregson 20/02/07	£20.00 + £5.64 Gift Aid
	A heartfelt thankyou for all the support you are giving our family Donation by granny and grandad looe 20/02/07	£50.00 + £14.10 Gift Aid
	Donation by amirah ghanem 20/02/07	£20.00
	Thinking of you all. x Donation by Donna Gregson 20/02/07	£20.00 + £5.64 Gift Aid
	Enjoy your little poppet! Bless you all! Donation by Zoe, Gav & Rudy 20/02/07	£10.00 + £2.82 Gift Aid
	Donation by nick collard 20/02/07	£10.00 + £2.82 Gift Aid
	Donation by David & Jo Santa-Olalla 20/02/07	£20.00 + £5.64 Gift Aid
	From Kate Kelleher at Boots Donation by Kate Kelleher 20/02/07	£2.00 + £0.56 Gift Aid
	Donation by sharon, leah & danny (Niki's friend) 20/02/07	£10.00 + £2.82 Gift Aid
	Dawn Mc. brought this to my attention, Good Luck Donation by Boonie & Michelle 20/02/07	£10.00 + £2.82 Gift Aid
	God Bless..Our thoughts are with you during this difficult time. Donation by Wendi & Rob Taylor 19/02/07	£30.00 + £8.46 Gift Aid
	Thinking of you, best wishes Sandra & DM Donation by DM & Sandra De Seja-Martin 19/02/07	£20.00 + £5.64 Gift Aid
	Hoping to see the three of you soon! xx Donation by Isla and Gary 19/02/07	£20.00 + £5.64 Gift Aid
	Good Luck Donation by Dave Le Fevre 19/02/07	£10.00 + £2.82 Gift Aid
	Best wishes. Donation by Damian Watson 19/02/07	£20.00 + £5.64 Gift Aid
	My prayers are with Brida and her parents, good luck in the sand, I'll stick to London Donation by Peter Freeman 19/02/07	£20.00 + £5.64 Gift Aid

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* Total raised online:	£8,555.00
Offline donations:	£6,500.00
Gift Aid plus supplement:	£1,853.72

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