Mark Moscrop is fundraising for DebRA

BABY BRIDA ELIZABETH HEARTFORD

'The Little Princess'

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Raising money for

DebRA

Charity Registration No. 1084958

EB - Epidermolysis Bullosa - is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. People with severe EB are likely to contract a fatal skin cancer. DebRA provides specialist EB nursing, funds extensive medical research and provides counselling, welfare, respite and advocacy.

Page owner

Mark Moscrop

Page closes

14/08/2007

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Raised: 125%

Target: £12,000.00
Raised so far: £15,055.00

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My story

Cpl ‘Damo’ Heartford is a RAF Police Dog Handler based in Wiltshire, he and his and wife; Stacey, were blessed on the 25th of January 2007 with the arrival of baby ‘Brida’, this beautiful child weighed in at a delicate 6lb 9oz.

Immediately Doctors diagnosed Brida as having the rare genetic condition Epidermolysis Bullosa (EB), in which the skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds. This condition is likely to affect 1 in 17,000 live births and it is estimated that there are currently 5,000 people with the condition in the UK. Because EB is an inherited condition (it cannot be caught), which is passed on genetically from parents to children, first time parents often do not know that they are carriers and will have no prior warning that the child will be affected, until birth.

There are varying degrees of EB the more severe types have an exceptionally high risk of developing skin cancers, shortening their lives by approximately 30-40 years. In its most severe form, the condition is fatal in infancy.

Brida has the most sever type and the Doctors have indicated that the prognosis for this beautiful and delicate child is extremely poor.

Assistance and professional care for sufferers and family is provided by the Dystrophic Epidermolysis Bullosa Research Association ‘DebRA’ this worthy charity will give Brida and her parents some measure of comfort during her remaining time.

Please give all you can, if you are affiliated with the Armed Forces then use this as the ‘family’ network which I have always imagined it to be. We are looking after one of our own.

Our thoughts and prayers are with Damo, Stacey and Baby Brida. .

	hope that this small donation helps you Donation by lisa & Gill Duncan 19/02/07	£20.00 + £5.64 Gift Aid
	our thoughts and prayers are with you all. xx Donation by Anne-Marie,Dayle,Sophie and Adam Peek 19/02/07	£40.00 + £11.28 Gift Aid
	Donation by Rab Motherwell 19/02/07	£10.00 + £2.82 Gift Aid
	All our love, you inspire us. Donation by Kirsty & Rich 19/02/07	£20.00 + £5.64 Gift Aid
	Our love to you all xxx Donation by Becky, Gez & Izzy 19/02/07	£10.00 + £2.82 Gift Aid
	Heard about Baby Brida through Greg. Sending love and best wishes to you both. Donation by Sandra Lewis 19/02/07	£20.00 + £5.64 Gift Aid
	Donation by Richard Abraham (contact of Darren) 19/02/07	£20.00 + £5.64 Gift Aid
	Best wishes to you all Donation by Ian Noakes 19/02/07	£20.00
	my love and best wishes to you all Donation by linda morgan 19/02/07	£30.00 + £8.46 Gift Aid
	Our thoughts are with you at this sad time x Donation by David & Laura Craig 19/02/07	£20.00
	Donation by Antonio Morales 18/02/07	£20.00 + £5.64 Gift Aid
	gutted for you, fish (beaz mate) take care Donation by the fishman and family 18/02/07	£20.00 + £5.64 Gift Aid
	Thinking of you all Donation by David & Ira 18/02/07	£30.00 + £8.46 Gift Aid
	Best wishes Love The Bunce Household Donation by Buncey 18/02/07	£20.00 + £5.64 Gift Aid
	Thinking of you, sending lots of love xxx Donation by Maria 18/02/07	£10.00
	Our love and thoughts are with all 3 of you xxxx Donation by Gemma & Nigel Nevard 18/02/07	£30.00 + £8.46 Gift Aid
	Your story has touched us and many at RAF Akrotiri. Praying for you & your beautiful daughter, Brida Donation by Neil & Claire Payne 18/02/07	£20.00 + £5.64 Gift Aid
	Thinking of you. With love "The Thrussells" Donation by Abby, Leon, Liv. Austin & Ronan 18/02/07	£30.00
	All our thoughts and prayers are with you during this most difficult time. Donation by Mike, Kelly & Thomas 18/02/07	£30.00 + £8.46 Gift Aid
	Our thoughts are with you and beautiful Baby Brida. Donation by Sarah, Andy & Harry Cunningham 18/02/07	£10.00 + £2.82 Gift Aid
	Our thoughts and prayers are with you all. Give our kisses to your beautiful baby Brida xxx Donation by Gren & Diane Connelly & family 18/02/07	£50.00 + £14.10 Gift Aid
	The 3 of us are thinking of the 3 of you & hope to meet your little princess very soon x Donation by Jessy, James & Ethan 18/02/07	£25.00 + £7.05 Gift Aid
	Brida is beautiful. Our thoughts are with you all. Donation by Daz Adams Mum & Dad 18/02/07	£10.00 + £2.82 Gift Aid
	Heard about what is happening through Nikki, what a very beautiful baby and my thoughts are with you Donation by sandra 18/02/07	£20.00 + £5.64 Gift Aid
	Our thoughts are with you Donation by Mandy O'Regan 18/02/07	£20.00 + £5.64 Gift Aid
	From friends Donation by Mark, Karen & Martyn 18/02/07	£20.00 + £5.64 Gift Aid
	Donation by Angie Quenby 18/02/07	£20.00 + £5.64 Gift Aid
	Thinking of you all, our love and best wishes go out to you. XX Donation by Richie & Julie Daws 18/02/07	£20.00 + £5.64 Gift Aid
	Damo and Stacey, our thoughts are with you and your beautiful little girl. Donation by Daz & Alison Pascoe 18/02/07	£50.00 + £14.10 Gift Aid
	Donation by anthonytate 18/02/07	£50.00 + £14.10 Gift Aid

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* Total raised online:	£8,555.00
Offline donations:	£6,500.00
Gift Aid plus supplement:	£1,853.72

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