Mark Moscrop is fundraising for DebRA

BABY BRIDA ELIZABETH HEARTFORD

'The Little Princess'

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Raising money for

DebRA

Charity Registration No. 1084958

EB - Epidermolysis Bullosa - is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. People with severe EB are likely to contract a fatal skin cancer. DebRA provides specialist EB nursing, funds extensive medical research and provides counselling, welfare, respite and advocacy.

Page owner

Mark Moscrop

Page closes

14/08/2007

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Raised: 125%

Target: £12,000.00
Raised so far: £15,055.00

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My story

Cpl ‘Damo’ Heartford is a RAF Police Dog Handler based in Wiltshire, he and his and wife; Stacey, were blessed on the 25th of January 2007 with the arrival of baby ‘Brida’, this beautiful child weighed in at a delicate 6lb 9oz.

Immediately Doctors diagnosed Brida as having the rare genetic condition Epidermolysis Bullosa (EB), in which the skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds. This condition is likely to affect 1 in 17,000 live births and it is estimated that there are currently 5,000 people with the condition in the UK. Because EB is an inherited condition (it cannot be caught), which is passed on genetically from parents to children, first time parents often do not know that they are carriers and will have no prior warning that the child will be affected, until birth.

There are varying degrees of EB the more severe types have an exceptionally high risk of developing skin cancers, shortening their lives by approximately 30-40 years. In its most severe form, the condition is fatal in infancy.

Brida has the most sever type and the Doctors have indicated that the prognosis for this beautiful and delicate child is extremely poor.

Assistance and professional care for sufferers and family is provided by the Dystrophic Epidermolysis Bullosa Research Association ‘DebRA’ this worthy charity will give Brida and her parents some measure of comfort during her remaining time.

Please give all you can, if you are affiliated with the Armed Forces then use this as the ‘family’ network which I have always imagined it to be. We are looking after one of our own.

Our thoughts and prayers are with Damo, Stacey and Baby Brida. .

	thoughts and prayers go out to you Donation by Julie Knox 15/02/07	£10.00 + £2.82 Gift Aid
	Very best wishes and our thoughts are with you Donation by Chris Pearson 15/02/07	£20.00 + £5.64 Gift Aid
	Words can't express our sorrow. She is beautiful Donation by Alfie & Lena 15/02/07	£100.00 + £28.21 Gift Aid
	Donation by John Pearson 15/02/07	£20.00 + £5.64 Gift Aid
	Thoughts and prayers from someone running the London Marathon this year Donation by Gareth John 15/02/07	£20.00 + £5.64 Gift Aid
	Donation by Alex Kwasny 15/02/07	£10.00 + £2.82 Gift Aid
	Donation by Eddie Dear 15/02/07	£10.00 + £2.82 Gift Aid
	Donation by Lois Bichener 15/02/07	£5.00 + £1.41 Gift Aid
	Donation by Naomi Adams 15/02/07	£10.00 + £2.82 Gift Aid
	I hope this donation can assist Brida' s condition my thoughts are with all the family Donation by Pete Badass Barrass 15/02/07	£20.00 + £5.64 Gift Aid
	Donation by Lyndsey Mills 15/02/07	£5.00 + £1.41 Gift Aid
	My thoughts are with Brida Donation by Lucy Burdsall 15/02/07	£20.00 + £5.64 Gift Aid
	Don't know you guys, but don't need to. Wishing you strength and thinking of you. Donation by Brian Nero 15/02/07	£50.00
	Donation by sue 15/02/07	£10.00 + £2.82 Gift Aid
	Good luck you beautiful girl, with love XXX Donation by ERNIE ROWE 15/02/07	£20.00
	Thinking of you xx Donation by Mick, Ali, Jake & Gabby 15/02/07	£30.00 + £8.46 Gift Aid
	My thoughts are with you & your beautiful baby Brida Donation by Rebecca Lewis 15/02/07	£10.00 + £2.82 Gift Aid
	Donation by Liz 15/02/07	£5.00 + £1.41 Gift Aid
	Donation by Kelly Simpson-Neild 15/02/07	£10.00 + £2.82 Gift Aid
	Donation by Galia English 15/02/07	£10.00 + £2.82 Gift Aid
	Our thoughts are with you. Donation by Jude and Kev 15/02/07	£25.00
	Donation by James Smith 15/02/07	£10.00 + £2.82 Gift Aid
	Donation by Anonymous 15/02/07	£20.00 + £5.64 Gift Aid
	Happy to help Donation by Jamie Gordon 15/02/07	£20.00 + £5.64 Gift Aid
	Donation by David Kenworthy 15/02/07	£10.00 + £2.82 Gift Aid
	Donation by Debbie Barrett 15/02/07	£10.00 + £2.82 Gift Aid
	Thinking of you all with lots of love xxxx Donation by DC & Cath 15/02/07	£30.00 + £8.46 Gift Aid
	Donation by Francesco and Gisella Gianello 15/02/07	£15.00
	My best wishes to the family and in your running endeavours on behalf of the K1 Triathlon Club Donation by Glyn Davies 15/02/07	£20.00
	Brida is so beautiful - Clive & I are thinking of you and send lots of love xx Donation by Clare Bairsto 15/02/07	£50.00 + £14.10 Gift Aid

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* Total raised online:	£8,555.00
Offline donations:	£6,500.00
Gift Aid plus supplement:	£1,853.72

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