Batten Disease Family Association
Registered charity number 1084908
On JustGiving since Feb 2008
About our charity
Batten Disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children and adults worldwide. The BDFA's Vision is to bring light to Batten Disease by being the central point of excellence in the UK for supporting affected families and to facilitate research into the disease.
How you can help
Raise money
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Our top fundraisers
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hugo chelton
£16,467.00 raised so far -
Tim Millsop
£7,057.00 raised so far -
Graham Pearson
£3,505.00 raised so far -
Beverley Roberts
£2,374.50 raised so far -
Bob Stanley
£2,119.50 raised so far -
PHILIP GLAZEBROOK
£2,100.00 raised so far