Thank you for visiting my fundraising page.

This page is in memory of Bethan Louise Edwards. Bethan passed away in March 2008 after her lifelong struggle with Spinal Muscular Atrophy type 1. Very few children with this condition reach their first year and all types of SMA limit lives.

Bethan was a true fighter and was just over two years when she was lost to us all.

The Jennifer Trust have been a great help to both Caron and I as well as many other parents and they are the only UK based charity directly funding research into one day finding a cure for this cruel condition. This page was originally set up when Bethan was with us and we will leave it here to her memory and as we continue to help raise funds and awareness for this small but crucial charity.

Thank you for your interest and fundraising efforts.

Love Alistair Caron and Maya.
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Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: Jennifer Trust for SMA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.