My story

Thank you for visiting my fundraising page.

This page is in memory of Bethan Louise Edwards. Bethan passed away in March 2008 after her lifelong struggle with Spinal Muscular Atrophy type 1. Very few children with this condition reach their first year and all types of SMA limit lives.

Bethan was a true fighter and was just over two years when she was lost to us all.

The Jennifer Trust have been a great help to both Caron and I as well as many other parents and they are the only UK based charity directly funding research into one day finding a cure for this cruel condition. This page was originally set up when Bethan was with us and we will leave it here to her memory and as we continue to help raise funds and awareness for this small but crucial charity.

Thank you for your interest and fundraising efforts.

Love Alistair Caron and Maya.
x



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Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: Jennifer Trust for SMA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

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My charity

Jennifer Trust for Spinal Muscular Atrophy

Jennifer Trust for Spinal Muscular Atrophy

Charity Registration No. 1106815

The Jennifer Trust for Spinal Muscular Atrophy works with children and adults who have spinal muscular atrophy, and their families. The charity offers a range of support services to help families cope with both the emotional and practical issues that the diagnosis brings, whilst funding research to find answers for tomorrow.

Donations 69

For a very special girl and a real fighter. xx

Donation by Chris Ross on 01/04/08

£20.00

+ £5.64 Gift Aid

Ran half marathon for Bethan with love.xx

Donation by Luke Tucker on 31/03/08

£210.00

+ £59.23 Gift Aid

Sending you all our love, goodnight Bethan.xx

Donation by Sian & Luke on 31/03/08

£30.00

+ £8.46 Gift Aid

Our thoughts are with you at this time, chin up.

Donation by The Edgars on 31/03/08

£30.00

+ £8.46 Gift Aid

Love to you all

Donation by Paul and Lisa on 31/03/08

£10.00

+ £2.82 Gift Aid

Our thoughts are with you.

Donation by Julian Rainford on 31/03/08

£25.00

+ £7.05 Gift Aid

Sorry for your loss, my thoughts are with you.

Donation by MikeC on 31/03/08

£40.00

+ £11.28 Gift Aid

A brave, beautiful angel, who will be loved and missed forever x x

Donation by Natalie & Kent on 31/03/08

£20.00

+ £5.64 Gift Aid

There is a brighter star now in the sky shining down on us, we'll look and think of Bethan. God Bless.

Donation by Brian, Ceinwen, Helen & Jo on 31/03/08

£30.00

Heartsore, but so grateful to have known Bethan.

Donation by Lesley & Nigel on 31/03/08

£50.00

+ £14.10 Gift Aid

Our thoughts are with you all. She was a beautiful little girl. xx

Donation by Eleri and Family on 31/03/08

£100.00

+ £28.21 Gift Aid

Loved by all forever and always; sweet dreams little angel x x

Donation by Nadine and Mark on 30/03/08

£20.00

+ £5.64 Gift Aid

In loving memory of Bethan; a little ray of sunshine who touched so many hearts x

Donation by Rhos on 30/03/08

£20.00

+ £5.64 Gift Aid

Our thoughs are with you at this time on the loss of your beautiful daughter Bethan..

Donation by June and Family on 27/03/08

£50.00

+ £14.10 Gift Aid

with all our love

Donation by Jo & family on 27/03/08

£20.00

+ £5.64 Gift Aid

So sorry to hear the sad news about beautiful Bethan.

Donation by Linda Griffiths on 27/03/08

£10.00

+ £2.82 Gift Aid

Thinking of you all at this sad time. It was a very brave fight, conducted with great dignity.

Donation by Rob D on 26/03/08

£10.00

+ £2.82 Gift Aid

Our thoughts are with you all

Donation by Tony and Margaret Sudds on 25/03/08

£20.00

Very gratefully received.

Donation by Friends from Natural England SW on 25/03/08

£300.00

Donation summary

  • * Online donations£3,161.40
  • Offline donations£3,075.00
  • Text donations£0.00
  • Total raised£6,236.40
  • Gift Aid£433.79

* Charities pay a small fee for our service. Find out how much it is and what we do for it.