<p><strong>View Kira's main </strong><a href="https://www.solvingkidscancer.org.uk/Appeal/kira"><strong>fundraising page</strong></a><strong> on the Solving Kids' Cancer UK website.</strong></p><p>&nbsp;</p><p>Kira’s been fighting neuroblastoma since she was 11 years old. She’s now 19, has faced years of gruelling treatment to get rid of her disease, and has relapsed 8 times. Her latest scan results in July 2022 show she is again in remission with no evidence of active disease. Kira and her family continue to fundraise for further treatments she might need as relapsed neuroblastoma is particularly difficult to treat.</p><p><p><strong>Kira's Story</strong>&nbsp;</p><p><p>In 2014, Kira complained of feeling unwell and over the following 7 months, Aud, Kira’s Mum, repeatedly took her to their local GP. Kira was referred to Gastroenterology for investigations. Her parents, Aud and Ronnie were devastated to learn that Kira had a huge mass in her abdomen. “Our world as we knew it fell apart at the seams”. Kira began treatment for neuroblastoma and in November 2015, her end-of-treatment scan confirmed that she was in remission but sadly her cancer returned.</p><p>With your support, Kira’s family raised funds for potentially life-saving surgery in America in 2018 and the operation was a success. Kira’s scans were clear in June 2018 but by August 2018 a scan showed disease in the pancreatic area and it was decided that Proton Beam Therapy in New Jersey would be the next step. This was paid for from funds already raised from Kira’s previous urgent appeal.&nbsp;</p><p><p>Sadly, Kira’s cancer continued to grow and scans in January 2019 showed new spots of disease. Her family were given the devastating news that Kira's disease is incurable. Since April 2019 Kira has been granted compassionate use of the third-generation ALK inhibitor lorlatinib drug. In October 2021 scans showed disease progression and she completed a six-month treatment plan in June 2022. Kira has had a good response to the latest treatment plan, and she currently shows no evidence of active disease. Kira and her family continue to fundraise for further treatments she might need.</p>