CF Trust Gene Therapy
Page creator: BEAT CF EVENTS
Page closes: 15th Sep 2008
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About the charity : Cystic Fibrosis Trust Cystic Fibrosis Trust
The Cystic Fibrosis Trust funds research into a cure for Cystic Fibrosis, the UK's most common life-threatening inherited disease.
Charity Registration No 1079049
Fundraising target:  £50,000.00
Donations so far:  £ 3,267.44
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Thank you for visiting my fundraising page. Please dig deep and sponsor me online.

 Our goal for 2007 is to raise funds for the CF Trust charity, by staging some high profile concerts in the UK. 

Our beautiful 10 year old daughter, Hannah, has Cystic Fibrosis, which is a genetic medical condition, causing lung damage as well as pancreatic and stomach problems to which there is currently no cure.

However, the CF Trust charity has made great progress into helping sufferers of this terminal condition and are much closer to curing the lung problems, which is the major cause of illness and death in CF. Scientists have developed a product to correct the gene defect found in the lungs and are planning a single clinical trial for 2007 followed by a multi-dose trial in 2008, funding permitting.

It costs £3million each year to fund the CF Scientists Consortium alone and these trials will cost an additional £4.7million. Therefore, because this medical breakthrough is so important and this cause is so close to my heart, We thought the best way we can help is to raise funds (and awareness) by organising some high profile concerts. As a parents and musicians, we feel this would be a very positive way of helping Hannah and all CF sufferers live longer and healthier lives.

Times and venues are flexible as we intend to put on one artiste at a time to ensure we raise as much money as possible. As we live in the south, we have contacts at venues such as Portsmouth Guildhall and Ferneham Hall, Fareham. However, any location in the UK is fine as we'll travel anywhere for the cause and the CF Trust has area managers throughout the UK to help.

Please donate to this cause even if you can't help with the concerts and please forward this to anyone you know who can help.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: Cystic Fibrosis Trust will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

So please sponsor us now!

Many thanks for your support. Jon & Alli x  Beat CF Events

Display Name Date Amount Tax Bonus  Comment
Laura Sucholet 05/04/2007 £5.00 £1.41 A great cause & good luck! I'd appreciate it if you would get in touch to share fundraising tips 
Jon 19/03/2007 £20.00 £5.64 Let's get this show on the road! 
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*Total donated online: £25.00
Amount raised offline: £3,242.44
Gift Aid plus supplement: £7.05
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concerts, cystic fibrosis, gene therapy, hampshire
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