About Children's Liver Disease Foundation

A diagnosis of liver disease irrevocably alters the lives of the child and the family. Hopes and dreams are shattered.

Liver disease has no respect as to whom it will affect and the child is ill through no fault of its own or the family. There are more than 100 different liver diseases that affect children. Most are life threatening and mean a lifetime of medical care.

In the last decade treatments have dramatically improved, partly through the effective research programmes and innovative pioneering new projects and activities funded and supported by CLDF. Children are alive today as a result.

This is opening up a new set of problems with young people having to adjust to living with a liver disease and facing a lifetime of feeling different from their peer group. Transplant has prolonged life, attention now needs to turn towards giving quality of life.

At present the Foundation is urgently seeking to raise £100,000 to fund a Patients Support Officer and develop an innovative project of support for young people with liver diseases.

The vision of the Children's Liver Disease Foundation is that childhood liver diseases will be understood and fought effectively thereby ensuring that young people with a liver disease and families will be able to take control of their lives and achieve their full potential.

The Children's Liver Disease Foundation fights childhood liver disease through providing:

• Pioneering research
• Effective education
• And giving professional, caring emotional support to families and young people with a liver disease

Continuing its leading role in the field of caring for children with a liver disease, the Foundation aims to develop its programmes of activities to provide an authoritative and effective voice in its support, in every respect, of young people, families and medical professionals.