About Children Living with Inherited Metabolic Diseases
- Services to Parents and Carers
Climb offers the following information services to parents, other family members and carers of children with a metabolic disease:
- telephone helpline offering information, advice and support
- written information by post (detailed information only available following confirmed
- diagnosis, appropriate professional counselling and telephone contact)
- details of other agencies and sources of help
- information about the latest research and whom to contact for specialist advice etc.
It also offers the following support services:
- ongoing telephone support and advice when required
- domiciliary visits in some areas
- bereavement counselling
- contact with other families
- financial assistance in certain circumstances and where there will be a direct benefit
to the affected child
- a national network of branches, support groups and trained volunteer befrienders.
Climb’s National Conference provides an opportunity to meet experts working in the field and to
meet other parents and professionals.
The charity also publishes a newsletter three times a year with up to date news, case histories and information. Research is supported through funding.
Professionals
Climb offers the following information services to professionals, of any discipline, involved
in the care of a child or young person with a metabolic disease:
- telephone helpline giving disease specific information
- written information available by post
- details of other agencies
- sources of help
- information about the latest research
- whom to contact for specialist advice, etc
Its conferences provide an opportunity to hear and meet experts working in the field and to
meet other professionals and parents.
Climb publishes a newsletter three times a year which is available to members with up to date news, case histories and information. Research is supported through funding and the identification of patient pools.
Our history
Founded in 1981 by a family who realised that there was nowhere to turn for information, advice or support about metabolic diseases, Climb is now a national umbrella organisation working on behalf of children, young people and families affected by metabolic disease.
The charity’s aim is:
To ensure the best possible quality of life for children, young people and families affected by metabolic disease and alleviate their suffering with the ultimate aim of prevention and cure.
It does this by:
- Providing information, advice and support for families and professionals
- Supporting families through grants to help meet equipment and other costs
- Funding research and facilitating medical treatment
- Educating professionals and others about this group of diseases
The demand for Climb’s services continues to grow. Many children who at one time would have been undiagnosed are now known to have been suffering from a metabolic disease.
As medical science and knowledge advances, this trend is likely to continue - there will be more families needing the charity’s support, more children relying on us to help find cures.
There will, too, be more hope - but only if the charity has the resources to match demand. Climb relies heavily on voluntary donations to fund our work. You can find out more about our achievements and how you can help us achieve even more elsewhere in this website.