Myself and my 12 year old daughter are tackling a 5k Inflatable Obstacle Run on October 19th 2019. We are hoping to raise money for a little girl born with a rare and severe condition called Smith Lemli Opitz Syndrome (SLOS). Emmy-J is having to travel to America for the treatment she requires and to explore new ways to extend her life. Emmy-J has been asked to go back to a hospital which studies for a cure, she will be a part of the big study and and be examined/tested by professional doctors that are highly experienced in SLOS. Any money we raise will go towards treatment and/or making life easier for Emmy-J’s mother.