My son Harvey and his friend Liam both aged 10 have planned a sponsored 13 mile walk to Chatsworth. Shortly after Christmas 2017 their friend William was diagnosed with Adrenoleukodystrophy (ALD). Unfortunately the damage to Williams brain is too severe for a bone marrow transplant and is untreatable. All money raised will go to help the family to help fund Williams needs in the near future.
The boys would appreciate any donations given and are happy to be raising awareness of the disease to help such an amazing family.
About ALD
Adrenoleukodystrophy, or ALD, is a deadly genetic disease that affects 1 in 18,000 people. It most severely affects boys and men. This brain disorder destroys myelin, the protective sheath that surrounds the brain's neurons - the nerve cells that allow us to think and to control our muscles. It knows no racial, ethnic or geographic barriers.
The most devastating form of ALD appears in childhood, generally between the ages of four and ten years old. Normal, healthy boys suddenly begin to regress. At first, they simply show behavioural problems, such as withdrawal or difficulty concentrating. Gradually, as the disease ravages their brain, their symptoms grow worse, including blindness and deafness, seizures, loss of muscle control, and progressive dementia.
Thank you in advance