I am trying to raise money for beautiful Esmé. She has been diagnosed with Rett Syndrome. I met her and her family over 5 years ago and prior to her diagnosis. Her condition being a spectrum disorder means that it will effect every child in many different ways. In the harshest case she could wake in the morning unable to walk anymore! She constantly hyperventilates which puts strain on her heart it's not great!

http://youtu.be/m-t2XDSoiwg is her film on you tube.

She needs to have fund raising in place for every eventuality so when the time comes her family can immediately react and buy that piece of equipment or modify their house so she doesn't have to go elsewhere.

Some of you may know that i only took up running at the end of April 2017. I have never been a ‘runner’ in the traditional sense of what people thinks makes a runner. What i have learned though is that being a ‘runner’ is far more than being able to run.

I will be training up to 3 times a week and entering as many races as possible this year to run at least 500 Miles (805km) across the year. It won‘t be easy but it will be worth it.

Here’s more about Esmé - https://www.facebook.com/Esmesallstars/

Here’s more about Rett - http://www.rettuk.org/what-is-rett-syndrome/

Thank you so much for your support.