A couple of months back my grandad became ill. The doctors didn’t know what was wrong with him. About a month ago my dad phoned me up and told me that my grandad had been diagnosed with motor neuron disease. This morning I got phone call saying that he had passed away from this awful disease. I am trying to raise money so that research can still go on and try to find a cure. For all of you who don’t know what it is I’ll tell you. MND can affect how you walk, talk, eat, drink and breathe. Some people also experience changes to their thinking and behaviour. However, MND affects everyone differently. Not all symptoms will affect everyone, or in the same order. Symptoms also progress at varying speeds, which makes the course of the disease difficult to predict.

MND is life-shortening and there is no cure. Although the disease will progress, symptoms can be managed to help achieve the best possible quality of life.

There is a 1 in 300 risk of getting MND across a lifetime. It can affect adults of any age, but is more likely to affect people over 50.

MND affects up to 5,000 adults in the UK at any one time. As this is not a common disease, general health and social care professionals may not see many cases of MND. This means it is important to seek out specialists who have appropriate experience in its treatment and care – usually with referral to neurological service. I’m trying to raise money for this charity https://www.mndassociation.org so that a cure can be found.

Thankyou

Amanda Roberts