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Callum was born healthy by c section due to being breach he was fine till he was five weeks old then the reflux came and the fits he was having nineteen fits a day witch ended up in hospital for 3mths after all test lumber punchers and scans the put it down to epilepsy

So was on a lot of meds and still is now we he did have a massive fit that nearly lost is life to it was not nice so after that his fits was more controlled so they let him come home

About 2years after that we found out that it wasn't just epilepsy it was a rare form of epilepsy called ohtahara syndrome the doctor explained the it come with limited life but it not the epilepsy that could kill him it's the recurring chest infections that would it was hard for my husband to take in that we could lose our boy Callum but I explained it to him and he understands now

Days weeks go on we started learning about Callum conditions he has unsafe swollow so he had to have peg fitted due to that he has got cerbral palsy scholiosis curvature of the spine

Twisted neck suplication of the general head

Callum has been ventilated 5 times due to his chest he had rhino virus pnamoniea fluied on the lungs

Callum

Callum has lost a lot of his family member is aunties and his grandad who he was very close to

I hope I covered it all any questions please feel . ted Callum t to erves f o give